Dealing with Ileostomy Nerve Pain

Mar 15, 2023 4:17 pm

I've been told that the pain underneath the skin beside my stoma is likely nerve damage. My skin looks fine. Has anyone else been told this?

Mar 15, 2023 6:28 pm

No, can't say I've ever heard that. What nerves specifically do they think are damaged?


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Mar 15, 2023 6:50 pm

I did suffer short-term nerve pain around my stoma after surgery and took some nerve pain medication but eventually subsided.

Rose Bud 🌹
Mar 15, 2023 7:39 pm

I have nerve pain from the scar tissue from my midline. In the cold, it acts up but not as bad as it used to. My surgery was almost 3 years ago. It will depend on how deep your scar tissue is and how it healed. (According to my doctor)

Mar 15, 2023 8:55 pm

Is it ACNES? Aka abdominal cutaneous nerve entrapment?

Living with Your Ostomy | Hollister
Mar 16, 2023 3:03 pm
Reply to Drnjm

I'll look into this. My ostomy nurse describes the nerve as being trapped. Thank you!!

Mar 16, 2023 3:05 pm
Reply to w30bob

I'm not sure. Just a nerve to the right of the ostomy.