Dealing with Ileostomy Nerve Pain

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This topic discusses strategies for managing nerve pain associated with ileostomy, with participants sharing their experiences and advice.
Janjan

I've been told that the pain underneath the skin beside my stoma is likely nerve damage. My skin looks fine. Has anyone else been told this?

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w30bob

No, can't say I've ever heard that. What nerves specifically do they think are damaged?

;O)

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Cplumber

I did suffer short-term nerve pain around my stoma after surgery and took some nerve pain medication but eventually subsided.

Rose Bud 🌹

I have nerve pain from the scar tissue from my midline. In the cold, it acts up but not as bad as it used to. My surgery was almost 3 years ago. It will depend on how deep your scar tissue is and how it healed. (According to my doctor)

Drnjm

Is it ACNES? Aka abdominal cutaneous nerve entrapment?

 
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Janjan
Reply to Drnjm

I'll look into this. My ostomy nurse describes the nerve as being trapped. Thank you!!

Janjan
Reply to w30bob

I'm not sure. Just a nerve to the right of the ostomy.

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