Dealing with Ileostomy Nerve Pain

Replies
6
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1257
Janjan
Mar 15, 2023 4:17 pm

I've been told that the pain underneath the skin beside my stoma is likely nerve damage. My skin looks fine. Has anyone else been told this?

w30bob
Mar 15, 2023 6:28 pm

No, can't say I've ever heard that. What nerves specifically do they think are damaged?

;O)

Cplumber
Mar 15, 2023 6:50 pm
Very helpful

I did suffer short-term nerve pain around my stoma after surgery and took some nerve pain medication but eventually subsided.

Mysterious Mose

I take part in these forums almost every day. They and the people that contribute to them have made all the difference in my having the courage to live a normal life with an ileostomy. The people here are marvelous and come from all walks of life and from all over the world. Hearing what others have lived through has really helped me put my own experience in perspective. I highly recommend all ostomates and caretakers of ostomates to come join us.

Rose Bud 🌹
Mar 15, 2023 7:39 pm
Very helpful

I have nerve pain from the scar tissue from my midline. In the cold, it acts up but not as bad as it used to. My surgery was almost 3 years ago. It will depend on how deep your scar tissue is and how it healed. (According to my doctor)

Drnjm
Mar 15, 2023 8:55 pm
Very helpful

Is it ACNES? Aka abdominal cutaneous nerve entrapment?

 

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Janjan
Mar 16, 2023 3:03 pm

I'll look into this. My ostomy nurse describes the nerve as being trapped. Thank you!!

Janjan
Mar 16, 2023 3:05 pm

I'm not sure. Just a nerve to the right of the ostomy.