Has anyone ever tried the Stomagenie (https://stomagienics.com/) for bag changes? If so, were you using a one-piece system or a two-piece system? How did it work for you?
Na_a
Jun 26, 2023 3:17 pm
Past Member
Jun 26, 2023 5:20 pm
Hi there,
I tried them at the time I was using a two-piece system. For me, it didn't work too well. Then again, I was halfway retracted when I tried them. The hard part is you have to hold it in place with one hand and try doing everything else with only one hand.
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
Na_a
Jul 11, 2023 12:25 am
Thanks for the feedback! I'm thinking maybe they might be good for letting my skin get some air. I ended up ordering them, and they are a bit awkward to use for bag changes.
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In addition to your pouching system, you may require the use of an ostomy accessory to enhance the performance of your system.
Learn more about ostomy accessories, and when to use them.
Learn more about ostomy accessories, and when to use them.