Has anyone had their pouch open in the night?

Mysterious Mose
Sep 28, 2023 5:11 pm
Reply to 7dragonflies.hm

Pre-op on 10/2. Laparoscopy (hopefully, no knife) on 10/10.

Sep 30, 2023 10:56 pm

Excited to hear about it. Even the pre-op stuff. I'm scheduled for CT and a fluoroscopic x-ray, blood work and urology on 10/10 and 10/18.

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Mysterious Mose
Oct 01, 2023 12:00 am
Reply to 7dragonflies.hm

The closer I get, the more apprehensive I am. Still weighing the pros and cons. The problem with all this is that an ileostomy takedown with no colon is still a crap shoot as far as long-term quality of life issues go. Especially given that, at 75, long-term can be short-term in others' books. I am not sure how I would adapt to always having to know where to find a bathroom and nighttime incontinence is a concern. There is also my wife's concern about recovery. She is still gun shy from my first go 'round when it was touch and go for about 3 weeks. She believes she is too young to be a widow. :-)

Gonna need to make a decision one way or the other on Monday.


Oct 01, 2023 2:13 am

It's a tough decision, Daniel. Quality of life you now have.... vs ... Unknown quality of life. Guess it's how badly you want to get rid of your ostomy. I'm 65, and am unwilling to endure more surgery, recovery, and the possibility of a crap, (OK, a little humor) quality of life. If I was 45.. different story. I would go for takedown surgery ASAP.

C. Difficult
Oct 13, 2023 2:41 am
Reply to TerryLT

I use a quilted hospital underpad on top of my sheets. You should have 2 (they send me 4 every month???)

It's the length of my torso and 2/3 the width of my queen bed. Have an accident? PRESTO CHANGO! Take it off the bed to wash in the morning and slap the back-up on the bed, fresh jammies, back to sleep before the sleep in your eyes even begins to think of cracking open :)


Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister
Oct 21, 2023 7:43 am

Yes ma'am, and at the time (in a wheelchair) due to other issues, so I left a trail. Recently, same as you, I hit the floor. Of course, I thought I cleaned it all, and then, knock knock... the heater guy. Oh my God, I left some (ew). Anyway, I blamed it on my "damn cat," which I don't actually own.

Lol... gotta laugh sometimes.