Longest Appliance Wear Time?

Replies
17
Views
580
warrior
Feb 22, 2024 5:25 pm

Sup peeps? Curious about the longest amount of time you've gone without needing an appliance change.

I saw someone went 8 days?

My limit was 5 days. Would be pushing it for 7.

However, I have gone 14 days due to mobility issues and other abnormal circumstances.

What's your limit?

Hisbiscus
Feb 22, 2024 5:34 pm

I can only go at most 2 days. Anything after that smells like a sewer to me. If I shower, it's definitely going to loosen up. I've tried almost all bags out there, although this could be caused by rinsing at every empty, and/or that after mesh surgery my stoma went flat. I am in convexity, but that can only go so far.

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warrior
Feb 22, 2024 5:49 pm

@ Hibiscus: Thank you for sharing. That's rough...

Have you considered a relocation surgery to extend the stoma further out? I hear horror stories of flat stomas... such a raw deal.

I blame doctors' lack of experience causing this.

Ruins quality of life. Gotta be an alternative...

(Moments later)......

I just saw your hernia repair caused this flat stoma... read in a separate thread you replied to.

Hernias suck. Repairs usually cause more issues. I declined having mine done when getting Ken surgery last year...

A member said he had to retire due to weight lifting limitations.

Due to hernia repair. No thank you.

Mark1070
Feb 22, 2024 6:12 pm

I'm around 7 days now but have gone as long as 3 weeks (until the Skin-Tac adhesive dissolves because of skin oils). I only use Leukotape on wafer borders and Skin-Tac adhesive on skin. Blow dry that until lightly tacky and voila. If peristomal skin is healthy, 3 weeks is achievable.

Mysterious Mose
Feb 22, 2024 6:27 pm

I usually try to get 7 days. But if I detect any darkness outside the flange area, I will do a change as soon as I know I've entered a slow period.

 

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AlexT
Feb 22, 2024 7:14 pm

I've gone 7 or 8, but that was when I was still on medical leave and not doing much. 4 days is about right for me.

xnine
Feb 22, 2024 7:26 pm

I use Hollister 2-piece with a Salts ring and get 10+ days with Brava strips.

Ben38
Feb 22, 2024 8:08 pm

I'm usually a 3-4 day man as my skin gets irritated if any longer, but when I've been ill, I've done around 14 days, maybe a few more, just standard drainable 1-piece bags, various makes over the years. I've never used any of those banana strips or tape around the base.

TerryLT
Feb 22, 2024 10:04 pm

My usual is seven days, but I have occasionally pushed it to eight with no problem. Maybe I could go longer, but I'm a little nervous to try, so I stay on the safe side.

Terry

Kimmy050263
Feb 22, 2024 11:21 pm

In the beginning, I was 3 days tops. Now I am finding that I am looking pretty good at 4 days. That said, I do not want to chance a leak, so I change after 4 days. I use the Hollister 8901 bags and also use barrier rings. Those barrier rings really help things stay adhered to my crinkly belly.

Past Member
Feb 23, 2024 12:49 am

In the first few years, I could get away with changing once a week (ileo), but as I've gotten older and headed into the old crone era, my skin has gone through the "change" too (TMI?!), and the most I get now is 4-5 days, which is fine because I remember many years ago my stoma nurse telling me that's how long the appliances are designed to last. It can depend on what and how much I've eaten too, but every 4 days is usually the norm.

Beachboy
Feb 23, 2024 2:21 am
Reply to Mark1070

Damn... Good info to know. Especially if insurance or Medicare limits your monthly ostomy supplies.

Thanks

Beachboy
Feb 23, 2024 2:23 am

I usually go 7 days. Have pushed it to 9. Could probably go longer if needed. I use Hollister 2-piece for my colostomy.

Hisbiscus
Feb 23, 2024 2:28 am
Reply to warrior

Hi

Well, the doctor was actually a good doctor. I was in a study. I had two parastomal hernias and an umbilical hernia that was already there from years prior. He told me going into it he would relocate possibly but had to decide once he got in there. Yes, after surgery it went flat and I actually cried. I do not think unless I ever have to have an emergency surgery that they will relocate. I was told to never leave Cleveland and to only go to their hospital because the repair they did no one will understand what to do. It was a huge open surgery. I was happy with the flat tummy, just not the flat stoma.

I have a 25 lb weight-lifting restriction, so it's hard to find work. Caretaking is an option as long as they can walk and I don't have to lift them. I'm ready to cut down hours soon myself when I find something. At the moment, not working due to chemicals on the job. They were really getting to me.

RobN
Feb 23, 2024 11:34 am

High output ileostomy for the last 14 months and always get 6-9 days since getting the appliance fit right. Normally try to change at day 6, but these days, the stoma seems to be constantly active, so providing no leaks, I either postpone or withhold food until it stops, then change. Being a hairy male, it's not fun after day 7 as hairs around the stoma grow into the seal, and no amount of adhesive remover helps with the "wax job".

ron in mich
Feb 23, 2024 2:27 pm

Hi all, 4 days tops as my ileo is so active.

Downtown
Feb 24, 2024 10:08 am

Lots of variation! 5 to 7 days is normal for me.

slimwhitehicks
Mar 06, 2024 12:04 pm

I shoot for 7 days so I can change on the weekend. Doesn't always work—usually get about 5-6 days. Great topic. I've always wondered if I was being lazy for pushing it to a week instead of changing more often, but it looks like most folks like to get the longest wear possible.