First Day Home After Loop Ileostomy Surgery - My Experience and Recovery

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Danno
Mar 04, 2024 12:38 am

I was discharged from the hospital this morning after my step 2 of 3 surgery for reversal resulting in a loop ileostomy on Wednesday.

How's it going?

I'll start by saying they kept me in the hospital an extra day for no reason other than increased output, something I've never had issues with my previous stoma. I knew this was expected since we're playing with less plumbing, so hopefully things work themselves out as my system learns. I'm on meds to slow things down until my body adapts. They let me come home today to manage things myself with my own dieting. Hoping to thicken things up and get back to a manageable routine.

I'm also experiencing some uncontrollable output from the bottom end. Lots of liquid and blood. Manageable for the most part, but it does find its way out in small amounts when I bend over or pee. Mucus was a big part of my last stoma, so it was expected, but I'm a bit annoyed about the lack of control. The surgery was through my butt, so that likely caused some temporary issues that I hope recover over time. The surgeon says it's fine and should. We shall hope.

Aside from that, all is good. Pain is manageable and I'm way more confident with food since I've got the experience.

Of course… This is day 1. I'm sure most, if not all of this, will resolve with time.

Can't wait for week 7 so I can hit the gym :D

I'll update.

Riva
Mar 04, 2024 1:15 am

You've got this. Keep that positive outlook. Week 7 will be here sooner than you think. 💪

IGGIE
Mar 04, 2024 1:23 pm

One day at a time, mate. Regards, IGGIE

Posted by: Kimmy050263

I want to thank everyone for their suggestions, messages, and tips! So many have helped! We are learning as we go, learning the ins and outs of this bag. I have ordered special tape that does not irritate my skin and am now using Domeboro powder before putting on a new bag. My boyfriend says that my skin is so much less red!

Saw an ostomy nurse today; she said my boyfriend is doing everything right. One of my issues is that I am really thin, and my skin is really crinkly due to the surgery. We shall see how this bag goes.

This site is a real blessing. Everyone here is so awesome!

Kim

Morning glory
Mar 04, 2024 2:31 pm

You're doing well. Keep us updated.

CrappyColon
Mar 04, 2024 3:05 pm

But no ileus!!!!! 😁

 

Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister

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Danno
Mar 05, 2024 5:24 pm

Yeah. That's the best part!

kittybou
Mar 05, 2024 6:08 pm

Have you done the happy dance yet? (Carefully)

Danno
Mar 07, 2024 3:06 am

Of course! :D