I have had to change my bag because it was too thick. For a while, I had a lot of diarrhea, but it's back to its old self. Is your stoma sore?
ccordes01
May 02, 2024 12:25 pm
Mysterious Mose
May 02, 2024 5:44 pm
Do you use any deodorants in your bag? When I was using them and supplementing with Tic Tac mints, my ileum would be slightly sore. More of an itch-type soreness. Since stopping all deodorants, no more problems.
There really should be no reason to change your bag due to thick output. If you are having trouble getting it out, try adding water. I typically use 150 ml on the initial flush and follow that with another 150 ml to complete the flush and get all those little sniggly bits out. You will hear some people say that using water will loosen your seal. That's an urban myth, in my opinion. I normally get 7-8 days between changes.
Daniel
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Posted by: iMacG5
Hi Crossley. Ya know, I think it’s all about feelings. I don’t mean the pain feelings which could control everything. I mean the feelings inside our heads, our hearts and even our souls. I mean the feelings of who we are now compared to who we were; how we accept our situation or maybe we don’t. My wife asked how I felt and I said, “like crap”. She asked what hurt and I answered, “Nothing hurts, well, everything hurts, I don’t know, It all sucks.” That was a long time ago. You question if your feelings are normal. How normal is it to relocate your butt hole to your belly where it’s usually in the way of your belt and, you know. But that’s where we are and for lots of us we are so much better off than we were before, physically. Emotionally, psychologically, well, that might be a different story. I believe talk therapy is wonderful if we could find a real empathic or sympathetic listener. So guess what! I found MAO and began “talking” with a keyboard with some of the wisest, kindest most sympathetic and compassionate folks on the planet. Regardless of where we’ve been, lots of folks here have been there and worse places and found their way back healthier and happier. We really do help each other.
Keep “talking”,
Mike
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Mysterious Mose
May 02, 2024 10:34 pm
Both Adapt and Brava lubricating deodorant. They did not cause the irritation, as I kept using them for a while after stopping the mints. I've stopped using anything, as I have adjusted my diet enough to pretty much eliminate the stinky stuff.
gentlejohn
May 03, 2024 10:47 pm
Welcome to the club. I too have an ileostomy. You are in Kansas City. You need to be seen by an enterostomal therapist and develop a routine. Personally, I made a checklist so I would not forget something. Enterostomal therapists are available through Visiting Nurses and St. Luke's Home Health in your own home plus other services. Also, there are stoma clinics at Menorah, KU, University Health, and in the Northland. I highly recommend the clinic at University Health. I know the nurse. Good luck.
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