I have had my stoma for almost 3 years. After my surgery, while recovering at home, I remember the home health nurse saying I had another small opening as well as my stoma. As time went on, I also noticed this, but it looked like an area where excess stool would stay. This week, after a leakage, I saw actual output coming from this tiny pinpoint hole as well as my original stoma. Sorry for the long story, but has anyone experienced anything like this or know what is going on?
JOSHWILRYAN
May 20, 2024 11:59 am
ron in mich
May 20, 2024 12:10 pm
Hi Josh, welcome to the site. I think what you are describing sounds like what is called a fistula and probably should get an appointment with your doctor.
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Posted by: Brooklyn kara
Nervous but excited about tomorrow. I have been reading some of the threads here and am brand new to the site. I am grateful to have had the ileostomy so my body had a chance to heal but am truly hoping all goes well with the operation and future.
I have a collapsed disk in my back and sleeping on it for the past 7 months because of the bag has caused me constant daily excruciating pain. I haven't slept through the night and have had so many accidents.
I am so glad I found this site. Gained so much information so I am much better prepared for what happens post operation and what worked for people diet and supplement (fiber) wise. Thank you for that.
I have a collapsed disk in my back and sleeping on it for the past 7 months because of the bag has caused me constant daily excruciating pain. I haven't slept through the night and have had so many accidents.
I am so glad I found this site. Gained so much information so I am much better prepared for what happens post operation and what worked for people diet and supplement (fiber) wise. Thank you for that.
Axl
May 20, 2024 12:25 pm
Hello
If you have a loop ileostomy, it will have two holes: one for waste to enter the bag and another for mucus south of the stoma to enter the bag. The second one is often difficult to notice in the beginning.
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IGGIE
May 20, 2024 2:43 pm
I think it would pay to get this checked out to be on the safe side. We can only guess what it is. Regards, IGGIE
Justbreathe
May 20, 2024 5:20 pm
Loop ileostomy here. I have seen residue in that second little rosebud, which I call a dealer add-on. It only seems to dispense a bit of clear water-like liquid. Anything else had merely just lodged there on the way out of my stoma. It has not actually exited that hole, in my experience.
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aTraveler
May 21, 2024 1:58 am
Since you first saw this 3 years ago, you can probably rule out a fistula. You will continue to get output from a fistula. If you go a long time with no output, they close up and go away. Since you say it was pinpoint size and had no output, it would have been long gone. You will definitely know when you have a fistula because of constantly being inundated with stool on your abdomen and clothes/bedding.