Rubies, Burgers, and Stomas

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5
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470
Beachboy
Jun 29, 2024 6:09 am

Met Daniel (Lilmesican) for lunch at Ruby's in Laguna Beach.  What a fun, informative, emotional time I had.  I've never met anyone with an Ostomy.  We have a lot in common: Chemotherapy and losing all our hair, cancer, surgery, radiation therapy, extreme weight loss, and our little buddy.... Mr Stoma.  His is named Tommy, mine I call Herb.  Not sure why I named it Herb.. but somehow it fits.

Was fun to talk about stuff only someone with an Ostomy would understand.  Could you imagine talking to a regular person about..... pancaking??  

I look forward to meeting with Daniel again.

Justbreathe
Jun 29, 2024 12:14 pm

WOW an OSTOBRO! 👏👏👏🫶🏼

CrappyColon
Jun 29, 2024 12:38 pm

Love this! 😃

Gray Logo for MeetAnOstoMate

ConnMan

I began my Urostomy life February 27th, 2023...a month and a half ago. I stumbled upon this site from another on Youtube and website called VeganOstomy and between that site and this one, most of my fear and worry of not having any answers other than calling the Dr's office recording menu and hoping to hear back in the next day or two for an answer to leaks, skin irritations etc, or just feeling alone and the "no one understands" thoughts I had to look forward to in my mind were all put to rest by these two websites and the community here at MaO!! I have been here for a few weeks now, and the help and support offered by the members here is just amazing!! The information and support is absolutely priceless for anyone recently out of their surgery and have tons of questions or had it for years...sit down...have a good read and you will see for yourself!!

ruizvalerie149
Jun 29, 2024 4:26 pm

I can relate. I am still going through a lot. I've completed my treatment, chemo and radiation, and now I'm waiting for surgery.

ruizvalerie149
Jun 29, 2024 4:26 pm

I can relate. I am still going through a lot. I've completed my treatment, chemo and radiation, and now I'm waiting for surgery.

 

Stories of Living Life to the Fullest from Ostomy Advocates I Hollister

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Beachboy
Jun 29, 2024 4:57 pm

Keep us posted on your progress.  When is your surgery?  

Before I underwent chemotherapy, I met with Oncology nurses who explained the systemic drugs I would be infused with.  We discussed the physical and, just as important, mental aspects of what I was about to deal with.  They advised I should compose a mental picture, a scenario, about my battle with cancer.

I gave that notion a lot of thought.  And I did formulate a kind of movie, I would play in my mind as I suffered through the many rounds of chemo.  My therapy finished over 20 years ago.  I still vividly replay my "life battle" movie from time to time.  Keeps me focused and cancels out negative thoughts.

I'm sure many others have the same mental "Life Preserver" they reach for in tough times.  

Hopefully that would be something that could help you too.