An update

Replies
16
Views
388
Itsme58
Jul 29, 2024 2:19 am

Hello my friends, who provide me with support, prayers, and smiles.

I had my stoma revision and have been going day by day on the road to recovery, and... I had indigestion; it was horrible. I started throwing up bile (YUCK), white, yellow, sheesh green.

I called my home healthcare nurse, she called my surgeon, he called me; Ms. Seward, please come to the ER at your convenience.

I went at 6 PM, thank God for my neighbor Charlotte, who took me to the ER.

I had a CT scan with contrast... was told I had a hernia in my stoma, somehow my little intestine got pulled in with my colon when my surgeon did the stoma revision.

My body has been going through all kinds of bull poop, my stoma is oval, then removing the cancer the area is huge, bags don't stay on me. Poop sneaks under my moldable rings.

It is crazy how one little thing messes up your whole body. I've stayed in an awesome mood, head up and happy. Well, after the CT scan, a resident surgeon came into the room, he massaged the hernia out of my stoma area, and that has made me feel 200% better, and no pain in my leg. I thought I would have to use that walker with the seat everywhere.

I feel so much better, my grandbaby is my heart, she keeps me going, and is such a blessing. And my son is getting married, more blessings.

I want to thank everyone for prayers and just being here too, hugs to you all, Linda.

Beachboy
Jul 29, 2024 4:58 am

Hey you! Thanks for checking in. I have the same thing... a small intestine loop pushing up against my colostomy. I can see its bulge on the left side of my stoma. Hasn't caused any problems... except for the hernia.

Nothing is worse than bile. I know, it's a necessary body component... but still. Plus mucus... I could do without that too. It's good you sought out help right away and the surgeon was able to fix you up.

Take care

Gray Logo for MeetAnOstoMate

Why Join MeetAnOstoMate?

First off, this is a pretty cool site with 38,185 members who truly understand you.

When it comes to ostomy, members share DIY hacks to save money, product comparisons, practical advice on insurance and medical coverage advice, information on new products to make life easier, and much more.

But, it's not all about ostomy. We talk about everything.

Many come here for advice or to give advice, others have found good friends, and some have even found love. Most importantly, people here are honest and genuinely care.

🛑 Privacy is very important - we have many features that are only visible to members.

Create an account and you will be amazed by the warmth of this community.

  38,185 members
Itsme58
Jul 29, 2024 5:42 am
Reply to Beachboy

I come and read the posts, sometimes have a little pitty party by myself, lol, and think gosh I miss chatting with some really good people.

And feeling good is the best, I used to think God, I can’t live if I have a bag…pifffff it’s better than diapers, I change my grandbabbies poopy diapers, she is such a stinker, and then I thank God I am alive and wouldn’t want me, my life any other way.

Hugs to you 

Kas
Jul 29, 2024 10:12 am

Good morning, Linda,

I'm so sorry you had such a rough go of it, but very happy to hear you are finally doing better and feeling good!

Agreed, the bag is a million times better than diapers! I've been with both in the past and I'll keep the bag happily!

Stop with the private "pity parties"; you know that we're all here for each other! You should never have to feel alone.

I hope you have a good day today and now go love up that beautiful granddaughter of yours!

Kim

 

 

eefyjig
Jul 29, 2024 12:56 pm

You're an inspiration and it's so good for us to hear about all of your gratitude. It's what we should all strive for but not so simple to remember to do. It's easy to get stuck in our woes. Yay for pity parties.......and then getting past them. That resident surgeon being on call that day was a blessing❣️

 

How to Manage Emotions with LeeAnne Hayden | Hollister

Play
Morning glory
Jul 29, 2024 12:58 pm

Hi Linda, good to hear from  you.  So sorry  that you have gone through  more problems.  I am glad that you are feeling  better.  You can always check in. You  can also mail me anytime you need to vent. Love on your beautiful  granddaughter.  

Itsme58
Jul 29, 2024 1:40 pm
Reply to Kas

Thank you, Kim. Hugs.

Itsme58
Jul 29, 2024 1:42 pm
Reply to Morning glory

Thank you hugs

DexieB
Jul 29, 2024 4:08 pm

Thinking of you Linda and sending hugs and healing vibes your way!  

Mysterious Mose
Jul 29, 2024 5:12 pm

Linda, I am so sorry to hear about your tribulations. I've never had the experience of throwing up bile, but I watched it happen to my mother. It's an awful experience. I am glad to hear you sought help right away and your symptoms are being relieved. Surely, things will be better from here on. Keep positive and let us know how you are progressing. 😍

Daniel

Justbreathe
Jul 29, 2024 8:15 pm

Hey, hi, and thanks for checking in… sounds like you've had a rough go of it lately.

Not to worry about the pity party. I think probably we've all had them… I find it to be a good release, and when I get over myself, I can slap myself upside the head and move on - whew, thankfully that only lasted a short time. Take care and best wishes… enjoy that grandbaby! jb

Itsme58
Jan 01, 2025 1:26 am

I have forgotten how to create a topic, so I just want to say I haven't been here in a while and I've been really feeling great. However, I asked my surgeon if I was cancer-free and he sent me for a PET scan. Well, he also recommended I go to my OB/GYN oncologist who did biopsies on something gross he saw, and today he called me and said, "Ms. Seward, the biopsy came back positive. Yes, positive for cancer." I have cancer yet again. I go to a new oncologist on January 7, and hopefully, I will get a good plan in order because it's in my pelvic area by my lady parts, which is so fun, and I also have a growth in my lung, so getting them both checked out. I was worried and depressed today, so I went to the casino, and I had a little luck, and I went out to dinner and spent some winnings on a Long Island iced tea and a steak along with some other awesome side dishes, and I got cheesecake and a banana split for dessert. I just wish this nasty cancer would take a hike. But we all know everything takes time, so I am asking for my prayer warriors. Please pray for me. This is about my time dealing with this, and I felt so good, and I've been so happy, and my grandbaby. She is going to be a year old on January 10, and I love her so much. I miss you all. You take care of my prayer warriors. Please, please, please send me some prayers. Hugs to all of you. I hope you have a great and prosperous new year.

Morning glory
Jan 06, 2025 4:10 pm

Linda, I  am so very sorry that you have a return of the cancer. I am praying  for you sweet lady. Please  keep us informed.  

Itsme58
Jan 06, 2025 7:22 pm
Reply to Morning glory

This morning glory, I appreciate it. I've just been so emotional lately, but I'm holding my head up and making it go away. I'll try to inform everybody much better. You take care. Talk to you soon.

Beachboy
Jan 06, 2025 9:52 pm
Reply to Itsme58

Hello again

Sorry to hear the results of your imaging and biopsy test.

I do exactly what you did... live it up while I can. You enjoyed an excellent dinner, sipped one of my favorite drinks... and most important of all, desserts. And not just one... but two! I've ordered dessert many times before dinner. Then had dinner, and ordered dessert again after. 😃

One time as I finished my pre-dinner dessert, a manager strolled over and thanked us for dining with them. After he left, we ordered dinner. Then another dessert. The same manager walked by as we were digging into the second dessert... stared at us, totally confused, then slowly walked away. We laughed.

It sometimes does seem we just constantly fight to remain healthy. Don't let negative feelings get to you. I've been there, dealing with unexpected test results.

After my first cancer surgery and radioactive treatments... I underwent extensive testing and was told no cancer was detected. Yay, I was so relieved. I was confident enough to get married a couple of years later. During a routine check-up with my doctor, he suggested a CT scan. So I did it a couple of days later in the morning. That night at 9:30, the phone rang. It was my doctor. He said I had to come to his office NOW. As I hung up the phone and told my wife... She stared at me and yelled, "You're gonna die," then wailed and cried. It took a while for her to settle down. At the office, my doc and a pulmonologist showed me the CT films. Both my lungs were filled with tumors. Turns out my thyroid cancer cells didn't absorb iodine. So the 2 mega-dose radioactive iodine treatments did nothing. And follow-up radioactive imaging was useless too. They said nothing could be done except provide palliative care when I needed it. I never let it get to me, or get me down. I continued to work and plan for the future. That was 34 years ago. I still have those tumors in my lungs. They continue to grow. My longtime oncologist is mystified how I can remain in good health.

I take solace in Psalm 18: 6, 16

In my distress I called to the Lord;
I cried to my God for help.

From his temple he heard my voice;
My cry came before him, into his ears.

He reached down from on high and
took hold of me;
He drew me out of deep waters.

Take care

Itsme58
Jan 11, 2025 3:53 pm
Reply to Beachboy

Thank you, beach boy. It's nice to hear from you. I just got my chemo port yesterday. My new oncologist says he can get me into remission. He's pretty confident, so I'm ready to go onto my new path. I just need my prayer warriors, and thank you so much. I appreciate you all. I'm sorry I haven't come in here much, but I'll try to do better.

Love my friends, Linda

eefyjig
Jan 11, 2025 5:55 pm

All prayers coming your way, Linda. Take comfort in knowing that your oncologist is confident - that’s major!