Seeking a Dual Ostomy Support Belt with Custom Features

Replies
2
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393
SusanT
Oct 28, 2024 7:11 pm

I desperately need a good support belt that can be customized for a double ostomy.

My urostomy is badly recessed and requires extra support. (Due to other health issues I won't be a candidate for revision surgery for some time)

I have a hernia under my colostomy that has lead to multiple leaks caused by bulging. The hernia doesn't require surgery yet and I'd like to keep it that way. 

My ostomies are on exactly the same level meaning any belt placed on one will go directly over the other ostomy. So the belt needs to accommodate both. 

Thanks for any suggestions 

PS It does appear that stealth belt would do this but I have been unable to get any response from them. The phone number just refers me back to the website... not helpful! Lol

w30bob
Oct 29, 2024 6:33 am
Very helpful

How about these;

https://ostomybagholder.com/products/double-ostomy-belt?srsltid=AfmBOooU6pYn0NlRe23puVI2HXDlwzR45OoIt3ktWokHxfLQOgjTkZPM

https://www.etsy.com/listing/468979795/adult-double-ostomy-belt-ostomty-pouch?show_sold_out_detail=1&ref=nla_listing_details

;O)

 

 

Posted by: ejbetty

Geekyjen,

Thanks for the reply.  I will be seeing my doctor on Friday and mention Entyvio.  I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared.  The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade.  Turns out I have been diagnosed with LUPUS. It is attacking my nervous system.  I had ulcerative colitis in 1996 and they had to remove my colon.  Had a J pouch for 10 years, until it started failing.  I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently.  I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared.  I have had two hospital stays now because of the blisters and the paralyzing incident.  I will be dealing with this forever now.  I have just been working on acceptance.

I love this website because of wonderful people like you!

 

Betty

SusanT
Oct 29, 2024 9:04 pm

Thank you! I will give them a try.