Hi. I have an ileostomy and my output has always been high. Right now, the ostomy nurse is having me use Imodium three times a day. Has anyone experienced this, and what tips do you have?
corlsharonl49
Jan 05, 2025 8:05 pm
Past Member
Jan 05, 2025 8:32 pm
I am sure you have, and I don't want to assume you haven't tried different foods. In case some foods: mashed potatoes, bananas, bread, bagels, applesauce, pudding, peanut butter.
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I began my Urostomy life February 27th, 2023...a month and a half ago. I stumbled upon this site from another on Youtube and website called VeganOstomy and between that site and this one, most of my fear and worry of not having any answers other than calling the Dr's office recording menu and hoping to hear back in the next day or two for an answer to leaks, skin irritations etc, or just feeling alone and the "no one understands" thoughts I had to look forward to in my mind were all put to rest by these two websites and the community here at MaO!! I have been here for a few weeks now, and the help and support offered by the members here is just amazing!! The information and support is absolutely priceless for anyone recently out of their surgery and have tons of questions or had it for years...sit down...have a good read and you will see for yourself!!
Morning glory
Jan 05, 2025 8:35 pm
The Imodium is good, also the foods that thicken your output such as Beth mentioned.
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warrior
Jan 05, 2025 11:25 pm
Oatmeal Raisin cookies will help.
I found Metamucil gummy bears help slow mine down... gotta have the gummy! 👍
All week it's been an improvement. It takes time though... trial and error.
corlsharonl49
Jan 06, 2025 12:30 am
Some help and it's still trial and error. Just wish I could figure out the right ratio. I've heard marshmallows too, but I don't see much success there.
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warrior
Jan 06, 2025 12:40 am
Oh ye of little faith... don't expect any slowdown too quickly with advice. Your body has been through hell and is adjusting slowly too.
Patience, luv... Rome wasn't built... well, you know this part... 🤭
Anne_Shirley
Jan 06, 2025 4:50 pm
I have the same issue. I have a very high output ileostomy. I got mine 11/18, so it’s fairly new.
I have to take psyllium husk to thicken my stool, as well as applesauce, potatoes, carrots, rice.
If I’m not eating enough, my output goes insane. Nothing but liquid and pouring out. But as soon as I eat something substantial, it slows down.
I can’t take Imodium bc it makes me very….loose lol the opposite of its intended use.
Do you ever get dizzy/faint? I do. I’ve passed out quite a bit since the surgery. And that’s bc of how much I produce ☹️
Try eating a small amount of some stool thickening foods every 2-3 hours, no liquids when you’re eating. Wait about 20 minutes after you finish to drink any liquid.
Avoid chocolates and anything that can liquify the output.
Im sorry you’re dealing with this, but here we are, 2 peas in a pod 🫛
Good luck and please send a message if you hear of anything that may work that I didn’t mention. 😊