Gurgling and Low Appetite After Ileostomy

Replies
10
Views
260
PeterStoma
Jul 09, 2025 2:42 pm

Hi

I am 8 weeks in from my ileostomy and suffering from low appetite, a full feeling, and lots of gurgling. Did anyone else suffer this? Does it eventually go away?

Thanks

Petrr

Ben38
Jul 09, 2025 2:52 pm

When you don't eat or eat very little, your stomach fills up with wind and comes out of your bag. That's why you will be having gurgling noises. Once you get back to eating your normal diet, it will mostly stop; you will get the occasional noise, more so when you're somewhere quiet with an audience to hear! Yes, it's normal not to feel like eating at first or to overeat; you just have to almost force yourself to eat.

Posted by: Nini4

Well,  I  hit the two year mark. I went back and read my posts from when I first found this site. I was very fortunate in that I stumbled upon it only 4 weeks post op. I have said many times that this community really saved me. The first 2 weeks after my surgery I shut down completely. It wasn't until about the 3rd week that my son came in to my room, flicked on the light and told me I was going to have to get back to living because I was scaring him. I had fallen into such a depression.  He  ticked me off,  but it also made me stop and think- what was I going to do? Feel sorry for myself and sulk, or be grateful I was alive. 

I've re-read my journals from that time and it was after my son kicked my butt, so to speak, I took an honest inventory and had to dig deeper than I've ever had to. I mean, I had survived a pretty nasty divorce, after a pretty crappy marriage and that was tough. But this was different. I felt like I was now a handicapped person who would be limited in their life and be looked at as a freak. My mental state was precarious, at best. 

But then I found this site. I just lurked a bit before posting. I read so many of the other stories and I started to see just how full my life can be, I was not handicapped,  and certainly not a freak! The stories of survival, the sense of humor, the support and compassion was inspiring.  It was then I made myself get out of the dark, and get my sh*t together.  

Not all rainbows and sunshine at first, hardly! But with grace from myself - to myself, and the kindness and willingness of the folks here to be supportive, non judgemental and openly share intimate details about their life circumstances,  l not only survived but thrived. 

I think of all the years I had suffered with such extreme pain, barely functioning,  and the many hospital stays and how that is all behind me now.  (All fingers, toes, and legs crossed that I never have to go near a hospital for myself ever again. I think I'd rather have a fork stuck in my eye. I loathe every about them.)  

So, to everyone who has been a part of this journey with me, to say thank you is not enough. I'm forever grateful to know you all.  My Angels, each one of you. 

 And as the Grateful Dead famously said,

"what a long strange trip it's been!"

Im so happy I'm tripping with you all.


PeterStoma
Jul 09, 2025 3:01 pm

Thanks, Ben. I am forcing myself to eat a reasonable amount. I just find this uncomfortable feeling and low appetite quite dispiriting and worrying. How long did it last for before settling? I am 8 weeks now.

Mr Brightside
Jul 09, 2025 3:29 pm

It's a bit unusual to me; the day after surgery, I was eating normally. I guess people react differently, but I would keep eating a little more than what you think you want. You'll get your strength back quicker and recover faster.

Plenty of electrolytes and high-protein foods, scrambled eggs and toast always went down a treat when I was recovering from surgery.

Things like lasagna are really good, both protein in meat and carbs to help absorb fluid.

Hope you get back to somewhat normal soon.

Mr B

PeterStoma
Jul 09, 2025 3:40 pm

Thanks, mate, I'm trying……

 

My Ostomy Journey: April | Hollister

Play
SusanT
Jul 09, 2025 5:40 pm

Electrolyte imbalances can make you feel sick and might be hurting your appetite. I'd try increasing your electrolytes. If it doesn't improve in a week or two, get your doctor to draw blood and check.

I had appetite problems for about 6-8 weeks post-surgery, but we did find my electrolytes to be a problem there at the end.

infinitycastle52777
Jul 09, 2025 6:00 pm

I agree with the things others have said. I would add that if you eat several small meals a day instead of three big meals, it might be more manageable for you. Eat snacks: crackers and cheese, peanut butter, bananas, avocados. If that doesn't work, try drinking a protein drink. Be careful not to get all your nutrition from drinks, though, because that will lead to high liquid output.

warrior
Jul 09, 2025 11:53 pm

Agreeing with everyone above, but I'd like to ask, do you still have any large intestine left? Did you have your rectum and anus removed and sewn up?

Kenn/Barbie butt).

My taste buds were affected after the Ken butt surgery.

I didn't want to eat or drink anything.

Became dehydrated. Went back to the hospital twice. This was last year.

How does your food taste? Do you think taste loss is the reason why you don't want to eat?

PeterStoma
Jul 12, 2025 12:57 pm

Thank you, very helpful.

PeterStoma
Jul 12, 2025 1:02 pm

Thanks for your reply. Yes, I still have all my colon, etc. I had to have emergency surgery following repeated severe bouts of diverticulitis, and I was too inflamed internally to remove the sigmoid colon.

Yes, my taste buds are affected, and I feel continually full/uncomfortable.

PeterStoma
Jul 12, 2025 1:05 pm

Thank you. I will ask to get my electrolytes checked. I do find the electrolyte supplements/drinks pretty unpalatable, though.