Wondering if anyone struggles with pouchitis and how they control it?
JustSam
Jul 14, 2025 6:06 am
AO166
Jul 14, 2025 7:17 am
Antibiotics
Cipro and Flagyl are prescribed by my surgeon, but I don't handle Flagyl well.
Rifaximin helps and is well tolerated.
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This site has been a blessing for me in learning how to cope with and navigate this journey as an ostomate. I have a colostomy as a result of a perforation in my colon since May of this year. I don't know yet if it will be permanent or reversible. The people on here have provided me with so much advice and information about living with an ostomy that I don't think I could get anywhere else. You all have given me hope and a place to come to for support. I still struggle with acceptance, but know that it will come if I am patient. Patience has never been my strong suit! Also, I love all the humor, although it really pissed me off when I first came on here. Thanks to all of you.
Remdog
Jul 14, 2025 8:53 am
JustSam Cipro is the mainstay that seems to work better than Flagyl.
A good probiotic to help before or after is VSL#3.
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Axl
Jul 14, 2025 9:50 am
Cipro and Flagyl in two-week rotations are the go-to for pouchitis and cuffitis, but not the ultimate solution. Flagyl makes me feel pretty ordinary, with a terrible taste in my mouth, and only provided minor relief at best. I moved to a 1 mg mesalazine suppository in the morning and a 2 mg budesonide foam suppository in the evening for about 6 months, and the pouchitis/cuffitis just went away about 3 to 4 years ago. I can't say that's the answer, but that's my story.