I have a question that I am hoping someone can answer for me. I first had a "straight-thru" (small intestine hooked directly to anus) sub-total colectomy done in 2009. This didn't work out for me because I was having 15-20 bowel movements per day with lots of "butt-burn." I decided that I had to have an ileostomy and had it done in Nov. 2010. Actually, ever since the sub-total colectomy, I have a "morning leakage problem." When I get up in the morning, I am completely dry but within an hour of being up (sitting on the couch watching the news), I start feeling wetness on the back (top of butt crack) of my pajamas. Sorry if this sounds really gross, but I really need an answer to this problem and so far, 4 doctors say, "I don't know what that can be." The liquid that comes out seems like water because: it is colorless, has no smell, and dries up after a while (no stain). The doctors ask if it is coming from the anus. I tell them I am a little wet there, but there is no leakage on my underwear at that spot; I just end up with a big circle of wetness literally at the top of the butt crack, and it is embarrassing! One doctor visually examined me there and said he can't see a fistula or anything, so he thinks the liquid is coming from a sweat gland. I am very skinny, always cold, and never sweat unless I exercise hard, so I feel it can't be coming from a sweat gland.
Please, does anyone have any ideas or any advice?! This is driving me crazy. It is hard enough just to deal with having an ileostomy; I don't need to have wet pants every morning!
Thanks so much!
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Watery Leakage Every Morning - Seeking Advice for Ileostomy-related Issue
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