Hi, I'm new to this site, still trying to figure it all out.
March this year, I collapsed bleeding, took to a&e, said I had a hole in my bowel. Then told me I had a huge abscess in my bowel. 3 weeks in the hospital, 2 operations to remove abscess, 2 drains put in my rear opening, "temporary" stoma fitted to give my bowel a break and to heal it.
Hole in my bowel is 7cm long, seton stitch put in. My stoma was huge, had lots of bother with it, it leaked, farted really loudly and was painful a lot of the time. It then prolapsed twice, had to go to a&e again twice and have it pushed back in by a surgeon...agony it was. Then another op to re-fashion the stoma 2 weeks ago. The stoma is a lot smaller now, but god, I feel worse.
I get a constant twisting and tightening sensation in the stoma, really bad wind, trying different bags, they are leaking...had to change my bedsheets for the fourth night last night.
Also my rear end..the seton stitch is hanging out of my anus, my anus leaks transparent fluid and I have this bearing down feeling, like I need to go to the toilet numerous times a day, so I'm spending a lot of time sitting down on the loo passing fluid..ironic for someone with a stoma!
All this in the space of 4 and a half months. Think I have PTSD, have nightmares, am anxious a lot. This thing is dominating my life, really getting me down. I read the posts and blogs on here and ask myself, am I being a wimp? Am I not being strong enough? The past few months have been extremely difficult and can't see the light at the end of the tunnel.
Sorry for the moan, needed to vent and write this all down.
March this year, I collapsed bleeding, took to a&e, said I had a hole in my bowel. Then told me I had a huge abscess in my bowel. 3 weeks in the hospital, 2 operations to remove abscess, 2 drains put in my rear opening, "temporary" stoma fitted to give my bowel a break and to heal it.
Hole in my bowel is 7cm long, seton stitch put in. My stoma was huge, had lots of bother with it, it leaked, farted really loudly and was painful a lot of the time. It then prolapsed twice, had to go to a&e again twice and have it pushed back in by a surgeon...agony it was. Then another op to re-fashion the stoma 2 weeks ago. The stoma is a lot smaller now, but god, I feel worse.
I get a constant twisting and tightening sensation in the stoma, really bad wind, trying different bags, they are leaking...had to change my bedsheets for the fourth night last night.
Also my rear end..the seton stitch is hanging out of my anus, my anus leaks transparent fluid and I have this bearing down feeling, like I need to go to the toilet numerous times a day, so I'm spending a lot of time sitting down on the loo passing fluid..ironic for someone with a stoma!
All this in the space of 4 and a half months. Think I have PTSD, have nightmares, am anxious a lot. This thing is dominating my life, really getting me down. I read the posts and blogs on here and ask myself, am I being a wimp? Am I not being strong enough? The past few months have been extremely difficult and can't see the light at the end of the tunnel.
Sorry for the moan, needed to vent and write this all down.