MeetAnOstoMate is a remarkable community of 41,451 members.
“I found real people, real humor, and answers I couldn’t get anywhere else.”
“The support here impressed my husband’s medical team - they plan to recommend it.”
“This community saved me when I thought I was a freak. Now I’m thriving.”
“Thank god for this site - I finally knew what to ask my surgeon.”
Hubz had a regular checkup with the oncologist on Friday (his numbers are improving), and as they were asking how he's feeling since surgery, they became curious about how he's doing so well with his ostomy, both physically and mentally. He credited doing research online, trying different things, and especially the support from this group. They were asking because they see so many patients struggling to adjust.
We described this group as folks with every kind of ostomy, some for days while others for decades, but all willing to share what's worked for them with the caveat that every individual is different.
We described the most valuable element as feeling like you're not alone in this. That really piqued their interest, and they wrote down the link. It seems they had a few people in mind that might benefit from the community and thanked us for telling them about it.
You know, we can't remember exactly who we learned about this group from, but we're grateful for it every day! Thank you all! 🌻