Is anyone on here planning on going to the UOAA convention in Jacksonville, Fl this year in August?
Withbagwilltrvl
May 27, 2013 8:34 pm
Mrs.A
May 29, 2013 7:02 pm
Hi New, there is already a thread on this topic, I will try to attach the link~
Just in case this is it... https://www.meetanostomate.org/discussion-forum/viewtopic.php?t=5448&highlight=
Just in case this is it... https://www.meetanostomate.org/discussion-forum/viewtopic.php?t=5448&highlight=
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty