Preparing for Takedown Surgery - Nervous but Excited

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Brooklyn kara
Jul 01, 2013 12:41 am
Nervous but excited about tomorrow. I have been reading some of the threads here and am brand new to the site. I am grateful to have had the ileostomy so my body had a chance to heal but am truly hoping all goes well with the operation and future.

I have a collapsed disk in my back and sleeping on it for the past 7 months because of the bag has caused me constant daily excruciating pain. I haven't slept through the night and have had so many accidents.

I am so glad I found this site. Gained so much information so I am much better prepared for what happens post operation and what worked for people diet and supplement (fiber) wise. Thank you for that.
Primeboy
Jul 01, 2013 2:52 am

Everything is going to be fine. Be sure to stay in touch. PB (not originally from Brooklyn but 6 years in Carroll Gardens gotta be worth something.)

Posted by: Nini4

Well,  I  hit the two year mark. I went back and read my posts from when I first found this site. I was very fortunate in that I stumbled upon it only 4 weeks post op. I have said many times that this community really saved me. The first 2 weeks after my surgery I shut down completely. It wasn't until about the 3rd week that my son came in to my room, flicked on the light and told me I was going to have to get back to living because I was scaring him. I had fallen into such a depression.  He  ticked me off,  but it also made me stop and think- what was I going to do? Feel sorry for myself and sulk, or be grateful I was alive. 

I've re-read my journals from that time and it was after my son kicked my butt, so to speak, I took an honest inventory and had to dig deeper than I've ever had to. I mean, I had survived a pretty nasty divorce, after a pretty crappy marriage and that was tough. But this was different. I felt like I was now a handicapped person who would be limited in their life and be looked at as a freak. My mental state was precarious, at best. 

But then I found this site. I just lurked a bit before posting. I read so many of the other stories and I started to see just how full my life can be, I was not handicapped,  and certainly not a freak! The stories of survival, the sense of humor, the support and compassion was inspiring.  It was then I made myself get out of the dark, and get my sh*t together.  

Not all rainbows and sunshine at first, hardly! But with grace from myself - to myself, and the kindness and willingness of the folks here to be supportive, non judgemental and openly share intimate details about their life circumstances,  l not only survived but thrived. 

I think of all the years I had suffered with such extreme pain, barely functioning,  and the many hospital stays and how that is all behind me now.  (All fingers, toes, and legs crossed that I never have to go near a hospital for myself ever again. I think I'd rather have a fork stuck in my eye. I loathe every about them.)  

So, to everyone who has been a part of this journey with me, to say thank you is not enough. I'm forever grateful to know you all.  My Angels, each one of you. 

 And as the Grateful Dead famously said,

"what a long strange trip it's been!"

Im so happy I'm tripping with you all.


mitdad
Jul 01, 2013 3:02 am

Good luck and only positive thoughts. Barry (originally from Brighton Beach, Brooklyn).

Slow momma
Jul 01, 2013 3:33 am

Good luck on your surgery...will keep you in my prayers. I'm new here too and I found this site very helpful too. I've only had my ostomy for 3 months so I've been trying to get used to having one. It's a big change. Keep us posted as to how you're doing. Barbara

WOUNDED DOE
Jul 02, 2013 6:07 pm

Hope things are going well! Keep us posted on how you're feeling and take care! Healing thoughts being sent your way......

~Doe

 

Words of Encouragement from Ostomy Advocates I Hollister

Play
dnl74
Jul 03, 2013 11:46 am

Good luck, I was scheduled last Thursday to have it reversed, but at the last hour, Dr. came in and talked and it was decided it my best interest not to have it done. WAY too many issues and the colon he was going to reattach was still eaten up with diverticulitis. So it's here to stay but I am alive. Would love to have had it gone, but it's not happening so will accept it, going to be okay. Lots of family support.

Brooklyn kara
Jul 03, 2013 11:06 pm
Hello all. Thank you so much for the good wishes. The surgery went fine. I am still in the hospital as I have had a few minor complications. The doctor wanted to leave the site open to heal from the inside out. I have had terrible stomach pain. I kept telling my surgeon's residents. I was told to walk more because it was gas from the laparoscopic surgery. This morning they took a look and my skin had covered over the wound site drain. They had to cut it open, remove the drain, and squeeze out the accumulated fluid. One of them casually remarks, "This might have been part of your belly pain." Gee, you think! So painful. Now I have a fever, high blood pressure, and still pain. Last night I had violent dry heaves, then threw up a bit a few hours later.

The good news is that with the small items I have been able to eat (farina, pudding, etc. - tiny amounts), I produced my first bowel movements in over 7 months. Woohoo. I am also able to sleep on my side without fear of an accident. If my fever goes down and my potassium level stays good, I may go home tomorrow.

My surgeon stopped by and I let him know what had transpired as he was never informed by his residents. I think there will be a lot of Ensure in my near future until my tummy calms down. I will have a visiting nurse service to help with wound care. I really want to be home with my hubby and my comfy recliner and to see my 80 lb. lap dog Roxy. She has been such a comfort to me since I got ill.

I am so lucky as I was able to get a disability pension from my civil service job because I had over 27 years of service at 47. Now I must be positive that I will be a survivor.

Thank you all again. If I can be of any help to new patients, I am here. I struggled with getting the right bag for the first month.

Best, Kara
kurly
Jul 04, 2013 12:04 am

Hi Kara, I'm new here so this is the first time you've heard from me. Congrats on your surgery!!
I wish you a speedy recovery, Gina (not from Brooklyn originally but I'm here now).

Primeboy
Jul 04, 2013 12:59 am

Glad to hear the surgery went well and that you're getting to go home tomorrow. For what it's worth, I think the worst time to schedule surgery, if you have a choice, is in July or August when the new batch of interns and residents arrive, ready to learn at your expense. All of my surgeries in the past 10 years have been in January or May, and I feel pretty fortunate. Good luck in your recovery.        

PB
Slow momma
Jul 05, 2013 3:24 am

Sorry to hear of the problems that you had, but I'm glad you're doing better now. My wounds are open as well to heal from the inside out. It's a long process... hope you get to go home soon... take it easy and get some rest... Barbara