I have three outlets in my stoma. One is an ileostomy that is very liquid unless I take Imodium or something to slow down my gut. The second is what they call a mucous colostomy that for the most part just has clear mucus but from time to time has stool. The third is a tiny colostomy outlet that backs up and has resulted in three or four ileus situations. The stool that comes from there is large, very firm, and dry.
Most of the backups seem to come after I've had surgery or some procedure where anesthesia and pain meds are needed. My poor gut is either too fast or too slow, so I drink lots of water, avoid popcorn, mushrooms, peanut butter, tomato skins, etc., and use both stool softeners and stool firmers (Imodium) but worry and wonder what the result will be. Sort of a crapshoot. (Pardon the pun.)
My surgeon, who is Chinese, used to prescribe tincture of opium for me. It is a liquid that you can titrate (take drop by drop) to slow down your gut and firm up the ileus output and help you avoid dehydration. It is an old med that is very inexpensive to make, but Medicare no longer covers it at all, and if you can still find a pharmacy that dispenses it, it costs $400 for four ounces. (Codeine is an opium-based drug that also slows down the gut, but you can't adjust the dosage.)
I've been fighting ovarian cancer for three years and must admit that coping with the ostomies, the chemo, a kidney complication, and the surgeries has been a real chore. What I have found, however, is courage, endurance, faith, and the knowledge of how much I am loved by friends, family, and God. What more can you ask from life?
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Read our tips to help you prepare for air, ground, or cruise travel with a stoma.