Have you ever?

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Mike
Sep 27, 2009 1:48 am

Have you ever had one of those days when you would give anything not to have a colostomy/ileostomy?

Past Member
Sep 27, 2009 10:03 am


Yep, once a week on average; however, on the bright side, it does mean 85% of the time I am not overly bothered. My ileostomy does stop me from spending almost the whole day glued to a loo seat with crippling abdominal pain with a skin color of grey or yellow.
ConnMan

I began my Urostomy life February 27th, 2023...a month and a half ago. I stumbled upon this site from another on Youtube and website called VeganOstomy and between that site and this one, most of my fear and worry of not having any answers other than calling the Dr's office recording menu and hoping to hear back in the next day or two for an answer to leaks, skin irritations etc, or just feeling alone and the "no one understands" thoughts I had to look forward to in my mind were all put to rest by these two websites and the community here at MaO!! I have been here for a few weeks now, and the help and support offered by the members here is just amazing!! The information and support is absolutely priceless for anyone recently out of their surgery and have tons of questions or had it for years...sit down...have a good read and you will see for yourself!!

gutenberg
Sep 27, 2009 10:36 am


Oh Yeah, many, many days like that as I had never any bowel problems until I had a heart attack an apparently I was the only one who knew I had an aneurysm but didn't know it was ready to blow. The short version, when I was operated on for that it turned into a nightmare, blood cut off too long, KIlls my colon, got very ill, had to have two more ops and woke up with an iliostomy. I have forgotten the name of the docs who screwed up for which I'm grateful for, hate is a most useless emotion, but still......a knife and ahold of his sack.. .?
Hope you have a good day. Ed
feeling goog
Sep 28, 2009 5:32 pm

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Yes, when I am in public and have to use the bathroom, or in a quiet situation, and it is making noise....
janice
Sep 28, 2009 9:11 pm
Often!!!! But, I'm alive!!!!
 

Getting Support in the Ostomy Community with LeeAnne Hayden | Hollister

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gutenberg
Sep 29, 2009 12:22 am


Damn but ain't that the truth. Four little words say it all.