Seeking Advice For Managing Nighttime Wetness With Ileostomy

Seeking Advice for Managing Nighttime Wetness with Ileostomy

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dragon2

Apr 27, 2014 11:30 pm

pHello dragon2 (griffin); but its his mum JULIE POSTING THIS!!/p
pI need some help and ideas about griffin, he has to drink so much to be hydrated that at night he is so wet urine that we have not had a dry night yet!! I was very angry the other day when someone said to griffin" i think u should stop drinking at 12 pm and then u will be dry during the night,",,i didnt know this person had said this so i thought WOW he dry we may be getting somewhere,,when i found out this person had done this!!!i just started shaking knowing fully if he stopped drinking to be dry at night he would be very sick very quick!! WOULD YOU BE ANGRY??/p
pI have trouble getting people to understand that its medical from being wet because he is drinking so much but is also the deepest sleeper known to man kind!!/p
pNo only is this happening,,i was to he was lazy and had the wrong attitude at school and wont try!!! I CHECKED HIS BOOKS IN OCTOBER LAST YEAR TO FIND OUT HE HAD WRITTEN 4 LINES ON 4 PAGES,NO OTHER WRITING!!! I GOT HIM ASSESSED AT KIP MCGRAFT,,He has dyslexia and Irlene syndrome too,,mean while school its his attiitude, i knew better! OH YEAH THEN HE HAS THE ILEOSTOMY!!/p
pWHAT DO I DO???/p
pWHERE DO I START TO BE DRY OR CAN HE BE DRY???==we have tryed the bed alarm didnt work!!/p
pSOCIALLY HE SAYS I WANT TO BE A REAL BOY WITH NO BAG?? BUT I HAVE TO BE THERE EMOTIONALLY BUT ALSO BE THE STRONG ONE TO SAY "SORRY MATE THIS IS THE WAY IT IS ???? AND ITS BETTER THAN 5 YRS AGO!! WHEN ALL I WANT TO SAY IS,,,I KNOW???/p
pHELP JULIE MUM /DRAGON2(/p

Ewesful

Apr 30, 2014 3:56 pm

What about using pull-ups and not letting it get to be an issue - sounds like he has enough with adding the bed wetting issue -- there are other kids that have genetic issues without the ostomy and I read recently there is some new info there and worth discussing with a good urologist -- maybe some research along that line -- Good luck -- God bless him.

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Posted by: iMacG5

Hi Crossley. Ya know, I think it’s all about feelings. I don’t mean the pain feelings which could control everything. I mean the feelings inside our heads, our hearts and even our souls. I mean the feelings of who we are now compared to who we were; how we accept our situation or maybe we don’t. My wife asked how I felt and I said, “like crap”. She asked what hurt and I answered, “Nothing hurts, well, everything hurts, I don’t know, It all sucks.” That was a long time ago. You question if your feelings are normal. How normal is it to relocate your butt hole to your belly where it’s usually in the way of your belt and, you know. But that’s where we are and for lots of us we are so much better off than we were before, physically. Emotionally, psychologically, well, that might be a different story. I believe talk therapy is wonderful if we could find a real empathic or sympathetic listener. So guess what! I found MAO and began “talking” with a keyboard with some of the wisest, kindest most sympathetic and compassionate folks on the planet. Regardless of where we’ve been, lots of folks here have been there and worse places and found their way back healthier and happier. We really do help each other.
Keep “talking”,
Mike