Dating with an Ostomy or J-Pouch: Seeking Understanding

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Robinhood
Apr 08, 2016 10:57 pm

Hi,

I feel like it would be easier to date someone who can understand where you are coming from health-wise. I had an ostomy and now have a j-pouch, so I know both sides.

I live in Las Vegas and there seem to be no young people who live here with the same medical issues as I have.

Ty

Bananana
Apr 10, 2016 8:11 pm
Very helpful

Hey there Ty!

I totally get where you are coming from. I feel the same even though I have been incredibly lucky with the guys in my life thus far. My ostomy has not been an issue on any level in any of the past relationships I've had. I can't imagine what it's like for people who have actually had horrible experiences with judgmental people. Just know there ARE people out there who do not care!! Or even better, people who do care, but in a positive way! Think about the situation reversed, I'm sure you'd be kind and understanding to others in your situation? Anyway, I don't have the premium version or full access or whatever to this site, but I'd love to ask you some weird personal questions... haha gosh that sounds so creepy. But I am in the transition right now of getting a J-pouch. I've had my ostomy for two years, and just this January had the first step surgery to create my J-pouch. I have my stoma take down final surgery sometime in the beginning of May. I can't wait to not have to deal with ostomy pouch products, but I'm nervous about all the changes again! I know I'll make it work, getting my ostomy was not a planned thing, so having time to think about this is almost worse! I have so many questions. Anyway, if you're open to talking and maybe sharing a little of your experience, I'd really love to! I think maybe you can just reply here? Again, not super sure how this site works messaging-wise...

Thanks!

And, P.S. you'll do great with relationships! Don't worry :)

-Savannah

Posted by: w30bob

Hi gang,

I was thinking what a great resource this site has been for me since I found it. It would have been really helpful, but maybe a bit scary, to have found it before my ostomy, but that's water under the bridge. But I got thinking about it, and now I'm questioning why doctors and hospitals don't provide this site's contact info to any patient even considering an ostomy today. And how can we change that so potential ostomates can learn about the road ahead for them by getting on here and asking questions before the docs go chop-chop. How exactly do you get all hospitals to provide their patients specific information, like this website?

I just happened to find this site something like 4 years after my ostomy when I Googled "ostomy forum" or something like that. But I never found it during previous searches.....so I found this site pretty much by pure luck. We need to find a way to make this site available to new or soon-to-be ostomates......as that's when we really need to commiserate with fellow ostomates. Anybody have any thoughts on how we do this?

Thanks,

Bob