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Colostomy reversal

Thu Jan 04, 2018 10:16 pm
"This is the best website for people with an Ostomy, hands down. So much understanding. Everyone should join."

Hi guys

I'm home lying in bed from a procedure to see if my rectum is in good shape for reversal. 

I was wondering if anybody has had the same situation as me. And if so how was the healing process?

I had cervical cancer 8 years ago. A year later I ended up in Hospital with stomach poison. The general surgeon cut me open to fix an area of radiation damage to the sigmoid COLON. He decided he didn' want to do it and put a colostomy. I've had it 7 years and have made the best of it with no complications. I recently went to a specialist and he said today that my rectum is clean and healthy and he can go in  and reconnect me. I'm excited but very nervous. He said I would most likely have an ileostomy for 6wks to allow the resection to heal before allowing bowel in it. He did tell me that most of his patients will say at one point that they wish they still had the bag. He said I have to be positive and trust him that in time everything will get back to normal. Have any of you experienced this?

Thanks Love Shug

Thu Jan 04, 2018 11:41 pm

Hi Shug,

different reason but similar op,after my reversal it was like being toilet trained again, like knowing if you need the toilet or just to pass wind, get reconnected, stay strong  and live well , good luck x

MeetAnOstoMate - 27,282 members
Fri Jan 05, 2018 1:36 am

Helo Shug.

I have no experience of this at all but it sounds good and I wanted to wish you well.

Best wishes

Bill

Fri Jan 05, 2018 3:37 am

Hi Shug!

i wish you best of luck and quick recovery!

My sister has just had her ostomy operation a couple of week ago, its a tough experince for her and us, its tougher here in tanzania ostomy supplies are very expensive and we cant afford them. basicaly am asking for donations of ostomy supplies, if u have any left and wont be in use anymore please may we have them.

Fri Jan 05, 2018 4:26 am

Yes indeed 

Absolutely will send when I'm done and will be praying for her and your family. 

Sincerely Shug

Fri Jan 05, 2018 4:37 am

Thank you 

I have that feeling right now. Just from the endscopy where they blew air in there. I'e been close to toilet. I' trying to prepare. Congradulations on your reversal. I hope and pray you are doing awesome. God Bless Love Shug

Fri Jan 05, 2018 4:40 am

I do feel blessed after reading some stories. Thank you for your reply and well wishes. Sincerely  God Bless Love Shug

Fri Jan 05, 2018 7:47 am

needcrew haven't experienced that, but I truly wish you well!! God bless 

Fri Jan 05, 2018 8:05 am

Thank you very much Shug

May God bless you a quick recovery as well

Sat Jan 06, 2018 3:54 am

Thank you sincerely

Sat Jan 06, 2018 3:55 am

Send me your mailing address please.

Sat Jan 06, 2018 4:39 am
**** 

Sat Jan 06, 2018 5:36 am

I'm sorry Russell

When I click reply to a person's reply it must go to everyone. 

I was asking Stoneham for her address so I can send her sister some supplies.

Sat Jan 06, 2018 5:37 am

Stonegal

Sat Jan 06, 2018 10:42 am
No problem, onward and upward xx
Sun Jan 07, 2018 12:50 pm

I just had a colostomy reversal two weeks ago.  I had a davinci robot assisted hysterectomy last July and it burned by sigmoid colon as well as perforated my jejunum through and through. The doctor didn't know it. I had a half a gallon of sepsis two days later. Was rushed to a different closer hospital where they saved my life. I had a sigmoid colectomy, a jejunum resection and a colostomy in august and late December I was well enough for a reversal or "takedown ". It took a day only before things started kicking in and went home the following day. I have had no issues and am feeling fantastic. The process they use to prepare you is well received and works   

Sun Jan 07, 2018 2:45 pm

Wish you the best!! Be careful as you continue to recover!! God bless! Angelicamarie

Wed Jan 10, 2018 6:30 pm

I had my reversal surgery December of last year. I had totally freaked myself reading about the horrible outcomes and spending months at home near a bathroom!!  Either I have the best surgeons or I’m extremely lucky but the reversal was not too bad. I spent 5 days in hospital and was Home.  It took several weeks for my system to return to “normal” but it was never a dire emergency where I couldn’t get to a bathroom!!!

would love to share more if you’re interested, 

kate

Thu Jan 11, 2018 12:55 pm

Hi, always good to share especially as we're all different and a good story gives others hope xx

Thu Jan 11, 2018 7:27 pm
HI, I'm AL from Harahan, married, no kids, permanent ostomy for 3 yrs or so. Retired also, used to do triathlons up until I got colitis and c. diff and removal of colon. To be honest, I went through a depression with the ileostomy, always afraid of leaks and self-conscious. Not so bad now... Good luck on your reversal, you will be your old self again soon!! We sure have had some freaky weather lately!! Take care sweetie!! Al
Tue Jan 16, 2018 8:34 am

Well New Orleans guy it looks like we are fixing to get real freaky weather...

Thank you all for the input and well wishes. I go to New Orleans tomorrow in this nasty weather to talk and schedule my surgery. Prayers appreciated.

J5
Thu Jan 18, 2018 6:36 am

Hi Everyone,

My Mum just had a colostomy reversal don on the 4th of Jan 2018, the doctors here in Nigera?? well i dont think they even know what the post-op issues are so no one has told us what to expect or not. she was discharged 11 days later, she got home and we discovered pus comingout of the wound, this was drained, and just a few mins ago, the doctor dresed it and discovered the wound has now opened and is not healing.

My mum was diagnosed with Ovarian cancer which was what led to this colostomy. Please i need some counselling on what to expect, im already at my wits end.

J5
Thu Jan 18, 2018 7:03 am

HI,

You are so lucky! please did you encounter any challenges?

Wed Jan 24, 2018 2:56 pm
Jenerprise wrote:

I just had a colostomy reversal two weeks ago.  I had a davinci robot assisted hysterectomy last July and it burned by sigmoid colon as well as perforated my jejunum through and through. The doctor didn't know it. I had a half a gallon of sepsis two days later. Was rushed to a different closer hospital where they saved my life. I had a sigmoid colectomy, a jejunum resection and a colostomy in august and late December I was well enough for a reversal or "takedown ". It took a day only before things started kicking in and went home the following day. I have had no issues and am feeling fantastic. The process they use to prepare you is well received and works   


Jenerprise, I just got my (hopefully) temporary colostomy. I had it done emergent in Wisconsin. I'm curious if there's a surgeon you recommend in MN? I'd like to have a back up that isn't 5 hours away... ;-)

Wed Jan 24, 2018 4:02 pm
Praying for you
Thu Jan 25, 2018 6:20 am
FYI. Their is a lady who attends the monthly UOAA in Minneapolis that has had a reversal and she attends to support people in similar situations. The meeting is the 3rd Monday of the month. I try to send out reminders a few weeks prior to the meetings if you want me to put you on the list ?

Chris
Sun Jan 28, 2018 11:24 am

Yes!!!  I actually won't allow another surgeon to touch me.  Dr. Mark Sneider. He saved my life when i was brought into the ER and did my reversal 6 months later

Sun Jan 28, 2018 11:27 am

Hi Chris!

i reached out to Eileen and told her I would attend the St. Paul meeting if she would like that. It sounds like that woman has the other side of the river covered:). Thanks for the note!!

Sun Jan 28, 2018 11:31 am

Please feel free to email me directly:

Thu Feb 01, 2018 2:01 pm

People who have successful reversals often migrate away from this site.  Those with complications or who are incontinent are more likely to come back here.  So, you likely are not seeing a true crosssection of those who have had reversals.

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