Colostomy Reversal - Recuperation and Post-Op Details

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Newstom
Jan 29, 2018 10:56 pm

I am now 18 months post colostomy and Dr. said I am a candidate. I have been reading Charlotte's post, it sounds like you went through an ordeal! I am unclear about recuperation and why it takes 6 weeks. Are you bedridden? Wear diapers all the time? One of my biggest fears is the pain. I am a wimp. I don't really want to have an ostomy forever but on a good day I think like what the heck? I also think about when I age that maybe it's an advantage instead of diapers. I've gained 10 lbs. and have no desire to exercise with this thing. Can someone tell me more of the post-op details? Thanks and good luck to all of you

Bill
Jan 30, 2018 6:48 am
Very helpful

Hello Newstom. I think you will find that almost all major surgery takes at least six weeks of convalescence, depending very much on a person's metabloism. It's just a ballpark, minimum figure to offer some guidance as to how long it might take for things to geal sufficiently for people not panic that they might not be getting 'better'. I like your thinking with regard to getting old and not needing to wear diapers with the stoma. I thought precisely the same thing but unfortunately, I still have colon attached to the anal stump and it produces excessive amounts of mucus, which needs incontinence pads to catch it. I still think that the stoma was the best way to go but in my case, it did not prevent the need for diapers. 

Best wishes

Bill

Posted by: w30bob

Hi gang,

I was thinking what a great resource this site has been for me since I found it. It would have been really helpful, but maybe a bit scary, to have found it before my ostomy, but that's water under the bridge. But I got thinking about it, and now I'm questioning why doctors and hospitals don't provide this site's contact info to any patient even considering an ostomy today. And how can we change that so potential ostomates can learn about the road ahead for them by getting on here and asking questions before the docs go chop-chop. How exactly do you get all hospitals to provide their patients specific information, like this website?

I just happened to find this site something like 4 years after my ostomy when I Googled "ostomy forum" or something like that. But I never found it during previous searches.....so I found this site pretty much by pure luck. We need to find a way to make this site available to new or soon-to-be ostomates......as that's when we really need to commiserate with fellow ostomates. Anybody have any thoughts on how we do this?

Thanks,

Bob

Jenerprise
Feb 02, 2018 5:43 pm

I had my colostomy takedown on Dec 20th, 2017. It has been fantastic for the most part. I was out of the hospital in a day. Getting back to normal is kind of like a new normal. You become hyper-aware of regularity, etc. I haven't had any issues that would require diapers. I love my surgeon and wouldn't let anyone else touch me from this point forward. Make sure you follow their recommendations and know you trust your surgeon.

grammoo57
Mar 10, 2018 1:37 am

I am so happy to see a positive response regarding the reversal! I had emergency surgery on Nov 19 due to a blockage that burst. Five hours later, I woke up to a colostomy. I cried for days. My surgeon just sent a letter saying he will no longer be there. I have an appointment with a surgeon at the same place on the 28th of this month to discuss the reversal. My previous surgeon said it would take 5-6 months. I'm very nervous and have read so many scary things regarding the reversal. I have had a very hard time, going from watery stool one day to very hard stools the next. I can't find any information on that. Thanks for any input.

grammoo57
Mar 12, 2018 6:29 am

Did you have robotic or laparoscopic surgery? Wow, out in a day! That would be awesome. I unfortunately have to have another surgeon as the one who did my colostomy has left. I looked him up online. Says he likes to do robotic so people heal faster. That's what I'm hoping for.

 

How to Get Back to Fitness After Ostomy Surgery with Ryan | Hollister

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Jenerprise
Mar 12, 2018 12:01 pm

The DaVinci robot and an ignorant surgeon at Mayo were the reasons I had to have a colostomy bag in the first place. If you go to unplugtherobot.blogspot.com you can read our stories. Also on Facebook if you search for Unplug the Robot there are a lot of good scientific articles posted on its dangers and questions you should ask.

Again, I went to United Hospital in St. Paul after Mayo Clinic. It was the best decision I made and they are the reason I am alive today.

grammoo57
Mar 13, 2018 1:52 am

Jenterprise, I feel horrible for you. How scary. I did read that article. Thank you for sharing. I will definitely be asking lots of questions at my apt on the 28th, if he suggests the robotic I think I will look for another surgeon. I live in Wisconsin and had my emergency surgery at Regions Hospital in St. Paul. The surgeon I had was working from Health Partners and I received a letter stating he's no longer there and made an apt with the surgeon they have there. What are questions I should be asking regarding takedown? I assume you had laparoscopic and you're on the mend. Thanks again for your input!