Post-Ileostomy Health Issues: Hair Loss, Peeling Nails, and Bruises

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looking forward
Jun 13, 2019 12:56 pm

About 4 months after my ileostomy, I discovered my hair was thinning, fingernails were peeling, and there were red bruises on my legs. I went to a dermatologist—a young man who happened to have had some work done by my same doctor in Tampa. He told me this is common some months after the surgery, since it was serious and very traumatic for me. He gave me some cream, etc., and said it would all go away. Have any of you heard of this?

Bagface
Jun 14, 2019 11:05 am

Looking forward - About 4 months after my ileo surgery, my hair started falling out. The doctor said it was common after a high-stress event, such as surgery. It lasted for about 6 weeks. I lost around 40 percent of my hair. I was devastated too! But it has grown back, thank God! Good luck to you!

Immarsh

Hi All, If you have an " old" or recent ostomy, this is the place for you. I think I've been a member for more than 15 years, but I have had my surgery, since I was a kid of 15 ( do the math-that's more than 60 years ago). As a teen, with a new ostomy ( for Ulcerative colitis) my parents dragged me off to my first ostomy association meeting. I wasn't happy, but in the long run, it's the best thing that happened to me. I met others, older, and teens like me, adjusting to the changes. A group of us started a Young adult group, and helped each other, and even visited kids who were new to the world of ostomies. But soon I married, and moved out of state, and although made some connections with other NJ ostomates, I became pretty much isolated. Until I discovered MaO. By then, I was having a myriad of other medical issues, and my aging stoma " wasn't doing well". I received a lot of help and support from members! I was pleased that I was also back to supporting others. I met a gal on line (from Papua New Guinea) who was trying to help ostomates in her country. There is a scarcity of supplies in some other countries, and unlike the US, insurance to pay for supplies isn't available. When my son followed his "love" twenty years ago, and moved to Australia I took advantage of an opportunity to help other ostomates. On one of my first visits to Oz, I brought a suitcase full of Ostomy supplies, handed them off to an Ostomy assoc. On the Gold Coast, who then had a friend take them to PNG. They were grateful for the help, and Janet and I still write.. This is the place to be, if you need help, and it also gives you the opportunity to provide help and support to others. Feel free to write, if you'd like to chat, about things ostomy, or life in general. Best REgards to all.. Marsha

freedancer
Sep 01, 2019 8:42 pm


Yes, very common. I lost almost all of my hair after having four surgeries in a row, three of them emergencies. It grew back curly, which I had never had before. Then, after my neck surgery in October 2018 and my son's death in December of 2018, and the ongoing stress from my upcoming divorce, it has started to fall out again by the handfuls. So darn depressing! It is called Telogen Effluvium. Not sure if I spelled it right!

freedancer
Sep 01, 2019 8:44 pm

I have the blotchy red bruises on my arms. Is that part of the disorder? I am doing okay by the way.