Question: How can I manage diversion colitis without undergoing a reversal, especially with drainage and odor issues?

Answer: Based on discussions from the MeetAnOstoMate Discussion Forum, here are some insights and advice on managing diversion colitis without undergoing a reversal:

1. Understanding Diversion Colitis:
- Diversion colitis occurs when the colon is not in use, leading to inflammation and symptoms like drainage and odor. This condition is common in individuals with a stoma where part of the colon is bypassed.

2. Medical Consultation:
- Seek advice from a gastroenterologist or a specialized ostomy clinic. They can provide tailored advice and treatment options for managing symptoms.
- Consider getting a second opinion if current treatments are not effective.

3. Medication and Treatment Options:
- Fatty acid enemas and cortisone suppositories have been suggested to help with inflammation and symptoms like bleeding and cramping. However, these may not always be covered by insurance.
- Antibiotic suppositories might be useful if there is an infection or significant inflammation.

4. Dietary Adjustments:
- Experiment with dietary changes to see if they alleviate symptoms. Some individuals find that certain foods exacerbate symptoms, so keeping a food diary might help identify triggers.
- Consult with a dietitian to explore dietary options that might help manage symptoms.

5. Management Techniques:
- Use glycerine suppositories to help clear out discharge.
- Stick-on panty pads can be used to manage drainage discreetly and maintain hygiene.
- Odor management can be addressed with odor eliminator drops or odor-neutralizing tablets.

6. Surgical Considerations:
- Some individuals have opted for surgical removal of the rectum to eliminate the source of drainage and odor, though this is a more drastic measure.
- Discuss the risks and benefits of such a procedure with your healthcare provider.

7. Community Support:
- Engage with support groups or forums to share experiences and gain insights from others who have managed similar conditions.
- Emotional support from others who understand the challenges can be beneficial.

8. Long-term Management:
- Be prepared for ongoing management of symptoms, as diversion colitis can be a chronic condition.
- Regular follow-ups with healthcare providers are important to monitor the condition and adjust treatment as necessary.

If you have further questions or need more personalized advice, consider posting your question in the MeetAnOstoMate Discussion Forum to connect with others who have similar experiences.

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