Question: What should I do if my small intestine shuts down after hernia repair with the Sugarbaker technique and enterocutaneous fistulas form?
Answer: Based on discussions from the MeetAnOstoMate Discussion Forum, here are some insights and management options for dealing with small intestine shutdown and enterocutaneous fistula formation after hernia repair using the Sugarbaker technique:
1. **Consultation with Specialists:**
- It is crucial to consult with a gastroenterologist or a surgeon who specializes in complex hernia repairs and fistula management. Seeking opinions from multiple specialists, especially those at major surgical centers or teaching hospitals, can provide a broader perspective on treatment options.
2. **Surgical and Medical Interventions:**
- Surgical intervention may be necessary if the fistula does not heal on its own. Options include surgical removal of the fistula and possibly creating a new stoma if required.
- Consider exploring alternative surgical techniques or materials if the initial repair has led to complications.
3. **Diet and Lifestyle Adjustments:**
- Post-surgery, maintaining a low-residue diet and ensuring adequate hydration can help manage symptoms and prevent further complications.
- Avoiding strenuous activities and heavy lifting is advised to prevent exacerbating the condition.
4. **Use of Supportive Devices:**
- Hernia support belts can help manage the hernia and provide relief from discomfort. Brands like Nu-Hope are recommended for their quality and comfort.
5. **Home and Hospital Care:**
- Home health care, including nursing and therapy, can be crucial for managing the condition and aiding recovery post-surgery.
- Specialized wound care and the use of colostomy bags can help manage discharge from the fistula.
6. **Emotional and Psychological Support:**
- Counseling for both the patient and their family can be beneficial in coping with the emotional toll of managing an enterocutaneous fistula and the associated surgeries.
7. **Monitoring and Follow-Up:**
- Regular follow-up with healthcare providers is essential to monitor the condition and make necessary adjustments to the treatment plan.
8. **Consideration of Non-Surgical Management:**
- If surgery is not immediately necessary, conservative management with observation and supportive care might be recommended, especially if the fistula is not causing significant issues.
For more personalized advice, consider posting your question in the MeetAnOstoMate Discussion Forum to gather insights from individuals who have experienced similar situations. Always consult with healthcare professionals for medical advice tailored to your specific condition.
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