This topic is about someone with an ileostomy who is experiencing some troubling symptoms and is seeking advice from others who might have gone through something similar. They have been dealing with:
- Pain mainly on the right side of the abdomen that now radiates.
- Noticeable swelling around and behind the stoma.
- A new, very pronounced awareness of food moving through the intestines and a strong internal pressure, feeling like their insides are about to burst.
- Continuous stoma output, which makes it feel different from the complete blockages they have experienced before.
They are curious if anyone else has had these symptoms and what the cause might have been. Here are some pieces of advice and insights shared by others:
1. Consult professionals promptly. It's advised to see a surgeon, WOC (stoma) nurse, or primary-care doctor without delay to rule out infection, obstruction, strangulated hernia, or adhesions.
2. Stay well hydrated. Increasing water and other fluids like green tea and juices can help keep intestinal contents moving.
3. Chew thoroughly and avoid high-risk foods for blockages. Foods like corn kernels, popcorn, tough fruit/vegetable stems, broccoli, gummy candies, large salads, heavy meals, and highly fibrous foods should be avoided.
4. Consider fiber supplementation. One person finds Metamucil (psyllium) effective for similar pain and swelling caused by undigested food or gas. It can be purchased online if not available locally in the UK.
5. Be alert to possible twisted bowel or strangulated hernia. Although rare, these conditions are serious and require immediate medical attention.
6. Gas management. Discomfort may be related to gas. Avoiding gassy foods like chili and sticking to soft foods, smoothies, soups, and black coffee can help lessen the pain.
7. Scar-tissue experience. Some have found that similar pain was due to narrowed or scar-tissue-bound sections of the small intestine, which required resection surgery.
8. Emotional support. Many emphasize that the pain is real, share personal experiences with ongoing discomfort, and offer prayers and willingness to chat.
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