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41,425 members
Feb 16, 2010

Feeling Alone with Chronic Illness and Its Mental Toll

This topic revolves around the emotional and mental challenges faced by a young mother dealing with a chronic bowel disease and a permanent ostomy. She shares her struggles with body image, frequent hospital stays, and the feeling of being mentally defeated. Here are some pieces of advice and insights shared by others who understand her situation:

1. Consider a Psychological or Medication Review
- Many suggest consulting a psychologist or psychiatrist who specializes in managing chronic illnesses. This can help in reassessing medication needs and improving mental health.

2. Venting is Healthy
- It's perfectly normal to feel anger, grief, or frustration. This forum is a safe space to express those feelings without fear of judgment.

3. Use Humor as a Coping Tool
- Some find that using humor, even if it's dark or sarcastic, can help mask pain, lift spirits, and build resilience.

4. Body Image and Feeling Attractive
- Acceptance of body changes takes time. Stylish one-piece swimsuits and flattering clothes can help you feel good about yourself. Remember, the ostomy bag is a life-saver, and self-worth isn't tied to wearing a bikini.

5. Perspective and Positivity
- Reflect on how life has improved since surgery compared to before. Focus on your children as a source of inspiration; showing them resilience teaches them strength.

6. Seek Peer Support
- The community offers friendship, private messages, and a listening ear whenever you need to talk.

7. Life After Ostomy
- There are many stories of people returning to work, studying, driving trucks, and maintaining relationships after having an ileostomy or colostomy.

8. Spiritual and Emotional Encouragement
- You are not alone. Prayers, virtual hugs, and reminders that things can get better, even if the progress is slow, are shared to offer comfort.
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