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Feb 12, 2021

Accepting Ostomy - Seeking Advice & Coping Strategies

This topic is about someone who has been living with a urostomy for five years and is struggling to accept it. They feel a sense of loss and find certain comments unhelpful. They are reaching out to others for advice on how to come to terms with their situation and manage daily life. Here are some suggestions and insights shared by others who have been through similar experiences:

1. Build support networks:
- Join local or online support groups related to ostomies or cancer.
- Make friends with people who understand or share similar challenges.

2. Address two main areas separately:
- Physical/medical management.
- Psychological/emotional impact, such as shock, trauma, and identity issues.
Breaking these down can make them feel more manageable.

3. Express feelings creatively or therapeutically:
- Keep a journal, write poetry or lyrics, or use other creative outlets to process emotions.

4. Communicate openly:
- Talk honestly with family, friends, or counselors. Admitting feelings of depression or anxiety can be relieving.
- Sharing your thoughts can reduce feelings of isolation and embarrassment.

5. Consider professional help if needed:
- Short-term medication or counseling can help with depression or anxiety. There is no shame in using these resources if they are needed.

6. Reframe the ostomy’s role in life:
- Focus on what you have regained, like freedom from pain, the ability to travel, or fewer bathroom emergencies.
- Remember that the stoma is a part of you, but it does not define who you are.

7. Accept gradual adaptation:
- Acceptance often comes in small steps over time rather than all at once.

8. Practical coping tactics:
- Develop a wardrobe that conceals or secures the pouch and boosts your confidence.
- Experiment with routines that minimize the appliance’s impact on your life.

9. Maintain activity and purpose:
- Continue working if possible, or engage in hobbies, exercise, or volunteering to stay active and connected with others.

10. Cultivate optimism and resilience:
- Avoid "why me" thinking. Measure your progress against your own past, not others.
- Find inspiration in people who overcome visible disabilities or serious illnesses.

11. Perspective checks:
- Visiting places like children’s hospitals or recalling pre-surgery suffering can remind you of how far you’ve come and why the ostomy is necessary.

12. You are not weak:
- Reaching out for help shows strength. Everyone’s timeline to acceptance is different, and using counseling, medication, or peer advice are all valid tools.
See full discusison
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