This topic is about someone who has a disconnected J-pouch and is considering having it removed. They are worried about undergoing another major surgery because previous operations have resulted in a lot of scar tissue.

Here are some key points and advice shared by others:

1. The person needs to use a catheter daily to drain fluid from the unused pouch.
2. They experience recurrent strictures at the pouch opening, which require dilation under anesthesia.
3. Severe bloating and pain occur when the opening closes, leading to fears of a potential pouch rupture.
4. During the original J-pouch surgery, the bladder was accidentally cut, which has added to the scar tissue and anxiety about further surgery.

Advice and insights from others include:

- Some people choose to keep a disconnected J-pouch if it doesn't cause symptoms. Surgeons might suggest monitoring it every two years to avoid more surgery and scar tissue.
- If the current medical team isn't providing satisfactory options, it might be helpful to seek a second opinion from another colorectal surgeon. This could involve changing insurance to access a broader network of specialists.
- One person shared their experience of having a deteriorated J-pouch removed after 26 years. They also had a permanent ileostomy created and complete anal closure. Although the recovery was challenging, involving restrictions on sitting and lying down, they found it ultimately successful and encourage others that they can get through it too.