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Mar 02, 2021

Chronic Fatigue After J-Pouch Failure - Seeking Advice

Topic Explanation
The forum topic is about a person seeking advice for chronic fatigue after experiencing J-Pouch failure and having a permanent ileostomy due to pouchitis. The individual inherited familial adenomatous polyposis (F.A.P) and had their large intestine removed 26 years ago. They are struggling with extreme fatigue and seeking advice from others who have experienced similar issues.

Advice and Insights
- Sleep patterns are crucial for managing fatigue. Establishing a consistent sleep schedule and ensuring proper sleep quality can help in regaining energy levels.
- Consider seeking help from a sleep clinic to diagnose and address potential sleep disorders like sleep apnea, which can significantly impact energy levels.
- Exploring all potential factors contributing to fatigue, including checking for B12 deficiency and monitoring blood pressure, can help in identifying and addressing underlying issues.
- For pouchitis, consider using Flagyl and Cipro as a combination treatment, which has been effective for some individuals in managing symptoms.
- It's important to wean off opioids and seek alternative methods for managing pain and motivation.
- Support from loved ones and finding comfort in enjoyable activities, such as eating comfort foods, can contribute to overall well-being and energy levels.
- Stay hopeful and keep exploring potential solutions, as tomorrow may bring better outcomes.
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