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Mar 02, 2021

Chronic Fatigue After J-Pouch Failure - Seeking Advice

This topic is about someone who has been dealing with chronic fatigue after experiencing a J-pouch failure and undergoing surgery for a permanent ileostomy. Despite various treatments and tests, the fatigue remains a significant challenge. Here are some pieces of advice and insights shared by others who have faced similar situations:

1. Sleep Quality and Circadian Rhythm
- Many people find that their fatigue is linked to poor sleep or disrupted REM cycles after surgery.
- Try to maintain a consistent sleep schedule, including naps if necessary, and avoid heavy meals before bedtime.
- Consider natural sleep aids like Valerian Root Tea, such as "Sleepy Time Tea" or "Stewarts Valerian Tea," with a bit of honey.

2. Screen for Sleep Apnea
- A sleep clinic evaluation might be helpful. If sleep apnea is diagnosed, using a CPAP machine can quickly reduce fatigue. Modern machines are almost silent.

3. Medication Strategies for Pouchitis or Residual Rectal Issues
- Medications like oral Flagyl (metronidazole) and Cipro (ciprofloxacin) can be effective, especially during severe flares, often improving symptoms within days.

4. Manage Pain Without Long-term Opioids
- It's important to avoid dependency on opioids like Vicodin. Look for safer and more satisfying pain management alternatives.

5. Nutritional Considerations
- Eating several small meals throughout the day can help. Including some "comfort foods" like ice cream, chocolate, or cheesecake in moderation can maintain weight and bring some joy.

6. Laboratory and Clinical Checks
- Re-evaluate basic health indicators that might mimic chronic fatigue, such as blood pressure, since hypotension can lead to sudden exhaustion.

7. Psychological Encouragement
- Keep exploring potential causes of fatigue one step at a time. Remember, each day brings the possibility of improvement.
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