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41,403 members
Mar 27, 2021

Living with a Colostomy: Seeking Understanding Friends

Living with a colostomy can sometimes feel isolating, especially if you're naturally introverted and hesitant about forming new friendships or relationships. This is a common experience for many who have a colostomy or ileostomy. Even if you feel generally well-adjusted, occasional loneliness can still creep in. Here are some supportive insights and advice from others who understand what you're going through:

1. You're in the right place. This forum is full of people who share similar experiences with ostomies and understand both the ups and downs.

2. Feel free to discuss anything here. Whether it's about stoma issues, output, or personal concerns, nothing is off-limits, and it's all considered normal.

3. Remember that posting personal contact information isn't allowed, but you can use the site's private-message function to connect with others.

4. The forum's activity can vary, sometimes slowing down during summer or when members are busy. Check back at different times to find more interaction.

5. It's common to feel unsettled even years after surgery. Many members have similar feelings, especially during long periods at home, like during pandemic lockdowns.

6. Keep things in perspective. Life with an ostomy can be a "roller coaster," but you're still the same person, just with a bag.

7. There are long-term success stories. Some members have lived 20 years post-surgery, including reversals, and cherish every extra day and memory.

8. Stay positive, stay safe, keep smiling, and lean on this community whenever you need support or information.
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