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41,452 members
Dec 27, 2021

Anxiety about sharing my ostomy experiences - anyone else feel the same?

This topic is about the anxiety and challenges faced by someone who had an ileostomy during childhood, which was later reversed. The person, who is blind, experienced a lot of stress and embarrassment due to relying on others for ostomy care. This dependence, along with a failed attempt to learn self-care, has led to lingering anxiety and post-traumatic stress symptoms. The individual is seeking support and connection with others who might understand their unique situation, especially in learning if blind patients can be taught independent ostomy care.

Here are some helpful insights and advice:

1. Remember that an ostomy can be lifesaving. It’s important to acknowledge its role in your survival and well-being.

2. Embrace self-acceptance. Your history with an ostomy is just one part of your life story. Confidence in yourself can influence how others perceive you.

3. Consider writing as a way to process your feelings. Whether through journaling, poetry, or even a book, expressing your experiences can be therapeutic and enlightening for both you and others.

4. Understand that PTSD from surgery or long-term medical procedures is a recognized condition. Seek out therapists who specialize in trauma related to medical experiences.

5. Research the topic of "trauma from major surgery" to find validation and guidance for treatment. Look for therapists who have experience with atypical causes of PTSD.

6. Keep looking for support groups, whether in-person or online. Connecting with others who have similar experiences can provide both practical advice and emotional support.

7. Remember that people may have negative opinions for various reasons, not just because of an ostomy. Focus on building your inner confidence and try to let go of others’ judgments.

8. Find spiritual reassurance in knowing that if future health issues require another ostomy, there will be solutions and support available to help you through it.
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