This topic is about the experience of living with a urostomy, specifically focusing on the routine of letting the stoma "breathe" during shower-time and daily care. After a year since their surgery for bladder cancer, the person shares how they have found a sense of freedom in their routine. They remove their urostomy appliance a few times a week during showers to avoid any residue from lotions and shampoos. They then wrap up in a towel, let their stoma air-dry, and enjoy some personal time before reapplying the appliance. They are curious about others' routines and seek advice on whether they are doing anything wrong. Here are some insights and advice shared by others:
1. Air-time benefits:
- Many people agree that removing the pouch before showering or bathing and allowing the stoma and surrounding skin to "breathe" is both soothing and healthy.
- It's normal for there to be some output while uncovered; just let it rinse away in the shower.
2. Cleaning the skin:
- Thoroughly clean the area with soap and warm water, then rinse well to remove all residue. This helps ensure a completely dry surface, which maximizes the wear time of the wafer.
- While some are advised to avoid soap, the general consensus is that soap is fine if rinsed thoroughly.
3. Bathing and soaking:
- Daily baths, including full soaks, are possible. Occasional accidents are seen as a small price to pay for the comfort and relaxation they provide.
4. Shaving for adhesion:
- After removing any adhesive, carefully shave the entire area around the stoma with a regular razor. A smooth surface can improve wafer adhesion.
5. Skin rejuvenation:
- Hot shower water and time without the appliance can rejuvenate the skin and offer a welcome temporary relief.
6. Reassurance for newcomers:
- New ostomates who have been told not to get the stoma wet can be reassured that water will not harm the stoma. Most long-term users comfortably shower or bathe without covering it.
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