This topic is about someone who has been living with a urostomy for 38 years after experiencing bladder damage from a medical procedure. A urostomy is a surgical procedure that creates an opening in the abdomen to allow urine to pass out of the body after the bladder has been removed or bypassed. Here are some insights and advice shared by the community:

1. The person received a urostomy at the age of 14 due to complications from a cystoscopy, which led to severe health issues including septicemia, a coma, and kidney failure. The urostomy helped end urinary incontinence and allowed them to return to a normal life, although they still experience occasional pouch leaks and odor.

2. In 2010, the person had their right kidney removed due to a large stone caused by an infection. They are curious about how others have dealt with kidney stones.

3. Many community members emphasize the importance of sharing experiences, as it can help lighten grief and increase joy. Emotional support and being part of a community are seen as very valuable.

4. Another long-term ileostomate shares that they have also experienced leaks and kidney stones, suggesting that these issues are common but manageable.

5. One member describes having a kidney stone removed using a laser via a catheter, which is an alternative to open surgery.

6. Members note that ostomy care and medical techniques have improved significantly over the years, encouraging others to stay engaged and continue learning.