Hi Ostomates, I have been in this forum since 2011 but never shared about me. Thought I will share about my experience being an Ostomate if it can be an encouragement to anyone. I had my urostomy at the age of 14. No cancer, no bladder disease! I suffered chemical burns of the bladder sphincter muscles when I went for a cystoscopy at the local hospital. (For those who don't know about cystoscopy: in the 80's this procedure was done by filling the bladder via catheter with 2 potassium iodide solution and taking an X-ray to check for possible stone in the bladder or possible changes in the kidneys. These solutions were prepared by the nurses or pharmacist during that time.) Following this, I had septicemia and went into a coma for 15 days with acute kidney failure. The kidneys recovered after peritoneal dialysis, and I came out of coma. But my bladder was completely damaged, and I had incontinence. After a year of waiting (and incontinence), I had my urostomy (ileostomy) surgery and reborn again. Though there are small glitches being an ostomate, like occasional midnight leakage or sudden leakage during work hours, strong odor of the bag, it's been 38 years of ostomy life. I can't recollect how it feels to pee normally. Like I read in one of the comments, we have pluses too. I don't need to sit on the public toilet seat! In 2010, I underwent nephrectomy (right kidney) as there was an 8cm stone in my right ureter, which caused hydronephrosis to that kidney. I am thankful to God for these experiences. I like being in this forum to read/hear what others go through in their ostomy life and take inspiration from their journeys.
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Hollister
When traveling, you need to pay special attention to your unique needs, issues, and potential hazards.
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Learn about special travel considerations for your ostomy type, so you can be worry-free.
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Hollister
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Learn more about caring for children with an ostomy on vacation.
Learn more about caring for children with an ostomy on vacation.