Hi Ostomates, I have been in this forum since 2011 but never shared about myself. I thought I would share my experience being an Ostomate if it can be an encouragement to anyone. I had my urostomy at the age of 14. No cancer, no bladder disease! I suffered chemical burns of the bladder and sphincter muscles when I went for a cystoscopy at the local hospital. (For those who don't know about cystoscopy: in the 80s, this procedure was done by filling the bladder via catheter with 2% potassium iodide solution and taking an X-ray to check for possible stones in the bladder or possible changes in the kidneys. These solutions were prepared by the nurses or pharmacist during that time.) Following this, I had septicemia and went into a coma for 15 days with acute kidney failure. The kidneys recovered after peritoneal dialysis, and I came out of the coma. But my bladder was completely damaged, and I had incontinence. After a year of waiting (and incontinence), I had my urostomy (ileostomy) surgery and was reborn again π. Though there are small glitches being an ostomate, like occasional midnight leakage or sudden leakage during work hours, strong odor of the bag, it's been 38 years of ostomy life. I can't recollect how it feels to pee normally π. Like I read in one of the comments, we have pluses too. I don't need to sit on the public toilet seat! In 2010, I underwent nephrectomy (right kidney) as there was an 8 cm stone in my right ureter, which caused hydronephrosis to that kidney. I am thankful to God for these experiences. I like being in this forum to read/hear what others go through in their ostomy life and take inspiration from their journeys.
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Hollister
As a student, there are easy ways you can prepare ahead and manage an ostomy while you are at school.
Read answers to frequently asked questions about how to change your pouch and participate in activities.
Read answers to frequently asked questions about how to change your pouch and participate in activities.
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Hollister
Returning to work after ostomy surgery should not be rushed.
Check out our 4 necessities before getting back on the job, and our other workplace tips.
Check out our 4 necessities before getting back on the job, and our other workplace tips.