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Apr 04, 2022

Adjusting to Ileostomy, Feeling Less Than 100% - Success Rate of Colon Transplant?

This topic is about adjusting to life with an ileostomy after undergoing a total colectomy due to cancer. The person is feeling about 85% of their former self and is curious about the possibility of colon transplants in the future. Here are some insights and advice shared by others who have been through similar experiences:

1. **Daily Care and Routine**
- Emptying and changing the pouch, as well as ordering supplies, have become routine tasks.
- Following advice on thorough chewing and staying hydrated is important.

2. **Well-being and Mental Adjustment**
- It can take more than five months to fully recover mentally. Being at 85% is considered good progress.
- Embrace the current reality and aim for a satisfying "new normal" rather than hoping for a future colon transplant.
- Perspective and attitude can greatly influence your quality of life.

3. **Support and Information**
- Use ostomy forums, consult with ostomy nurses, and explore product catalogs to learn about different options.
- An ostomy nurse can provide samples and help find the best system for you without costly trial-and-error.

4. **Pouch and Appliance Recommendations**
- Experiment with different systems, such as two-piece setups, which allow for bag changes without altering the wafer.
- One-piece Convex Hollister pouches are praised for their secure seal and reliability.
- If using Velcro-tail bags, consider adding 3M Micropore Surgical Tape for extra security.

5. **Diet and Hydration**
- Eat small, frequent meals and chew thoroughly to avoid blockages.
- Reintroduce foods slowly and monitor their effects.
- Maintain a high fluid intake, especially with an ileostomy.

6. **Managing Gas and Night-time Noise**
- Over-the-counter Mylanta can help reduce gas.
- Some abdominal sounds are unavoidable, but learning to ignore them can improve sleep.

7. **Physical Activity and Lifestyle**
- Don't let fear of leaks stop you from enjoying activities like swimming, biking, or handling horses.
- Specialized swimwear or careful appliance management can keep the pouch discreet.

8. **Coping Tips**
- Fresh air and sunshine can boost your mood.
- Develop backup plans for leaks to reduce anxiety, such as carrying spare supplies.
- Remember that everyone makes mistakes while learning; humor and community support can make the journey easier.

9. **Colon Transplant Reality Check**
- Colon transplants are currently experimental and extremely rare, not considered a practical option today.

These insights and tips are shared to help you navigate life with an ileostomy and find comfort in your new normal.
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