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Jul 17, 2022

Seeking advice for at-home pain control after ileostomy

The topic is about managing pain and recovery at home after having ileostomy surgery. This can be a challenging time, as it involves dealing with post-operative pain, swelling, and emotional stress. Here are some practical tips and insights to help ease this transition:

1. Pain Relief
- Consider taking regular Tylenol (acetaminophen) 1,000 mg every 6 hours, and make sure to take it on schedule rather than waiting for the pain to become severe.
- If Tylenol alone isn't enough, doctors might prescribe stronger medications like Tylenol #3, Vicodin, liquid hydrocodone, tramadol, or hydromorphone for short-term relief.
- Some people find that Delta-8/9/10 THC gummies help with pain and sleep at night.

2. Managing Cramping and Gas
- Gas-X (simethicone) can help break up gas bubbles and relieve discomfort.
- Dicyclomine 10 mg is effective for relaxing intestinal muscles and easing cramps.
- Using an abdominal heating pad can relax muscles and improve sleep.

3. Controlling Output and Preventing Dehydration
- For high output, doctors might recommend Imodium (loperamide) and codeine phosphate. St Mark’s Solution can help replace lost fluids and electrolytes.
- Since ileostomates lose sodium quickly, it's important to salt your food generously and stay well-hydrated.

4. Diet During Healing
- Start with soft, low-residue foods like eggs, yogurt, cheese, and fish.
- Chew your food thoroughly and gradually introduce harder-to-digest foods like raw carrots and popcorn.

5. Activity and Stoma Care
- Gentle walking can help relieve gas and speed up recovery.
- Remember, the stoma itself doesn't have pain nerves, so touching it to clean or change the appliance shouldn't hurt.
- JP drain removal might be uncomfortable but is usually not sharply painful.

6. Skin Care and Appliances
- Many people find success with Hollister ostomy products and report no leaks.
- Clean the stoma with warm water and dry it well before applying a new pouch.
- Try free samples from different manufacturers to find the most comfortable system for you.
- Some people use two pouch clips for extra security.

7. Professional and Emotional Support
- Reach out to your stoma nurse (WOCN/ET) for any questions or concerns—no issue is too small.
- It's normal to feel fear initially, but confidence will grow with practice and time.
- Rest when you need to, maintain a positive outlook, and connect with others for support.
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