This topic is about the experiences and practical tips for people undergoing a stoma revision and a "Barbie butt" surgery, which involves the removal of the rectal stump and anal closure. The person sharing their story is preparing for a stoma revision and is considering the additional surgery due to a condition called pelvic-floor dyssynergia, which makes it difficult for them to empty their rectum. They are seeking advice from others who have had similar surgeries.
Here are some insights and advice shared by others:
- Pelvic-floor dyssynergia is when the rectum doesn't relax, causing mucus and pressure to build up. The person wants to know if the Barbie butt surgery will help relieve these symptoms.
- They are curious about the risks of infection, whether they will need to "pack" the wound, the use of drainage bags, how long they might need to sit on cushions, and if the stoma revision can be done without moving the stoma site.
- They plan to ask their surgeon if the revision will make the stoma larger and affect how well the wafer sticks.
Advice and insights from others include:
1. Stoma revision:
- Often done at the same site by removing scar tissue and pulling the bowel further out. Relocation is only necessary in some cases.
- The stoma might be slightly larger because scarred skin is removed to help the wafer stick better. One person's stoma widened by about 2 cm after two revisions.
- The procedure usually involves an overnight hospital stay and is straightforward, with recovery typically happening at home.
2. Immediate post-op course for Barbie butt:
- Expect soreness and tenderness, with limited sitting for 4–12 weeks, sometimes up to 6 months.
- Some people had no drain, while others had a small drainage bag or wound-vac.
- Dissolvable stitches are now common and more comfortable than non-dissolving ones that need removal.
3. Pain control and recovery time:
- Pain management often starts with opioids like Percocet for a few days to a week, then switches to acetaminophen.
- Time off work ranges from 8–12 weeks, but complications can extend this.
- A few people needed heavy sedation after large procedures, but this is not typical for isolated proctectomy.
4. Sitting aids (avoid donut rings):
- Waffle Cushion 17"×17" (available on Amazon, Walmart).
- Micro-bead "squishy" pillows.
- Medical inflatable square with hand-pump (provided by community nurses).
- TEMPUR square wheelchair cushion and TEMPUR wedge-style car cushion.
- Some people use nothing after 6–12 weeks but avoid hard metal or wooden chairs.
5. Wound care and infection prevention:
- Keep the area clean and dry; use thin panty-style pads or gauze for initial seepage/mucus.
- A small amount of drainage for several weeks is common.
- Infections mainly occur in patients who had pelvic radiation and may require antibiotics, packing, or extended healing time.
- Those who healed without radiation did not need long-term packing.
6. Benefits noted:
- Eliminates mucus discharge and rectal pressure.
- Removes the risk of future stump inflammation or malignancy.
- Allows a return to normal activities like work, mountain biking, sea swimming, and long drives.
7. Ongoing limitations reported by a few:
- Difficulty sitting for long periods on hard surfaces; always travel with a cushion.
- Occasional "phantom" urge to defecate.
- Rare feelings of perineal bulging; it's advised to discuss with a surgeon if persistent.
8. Terminology:
- "Barbie butt" (sometimes called "Ken butt" for males) is a casual term for complete anal closure after rectum removal (proctectomy).
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