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Aug 10, 2022

Urgent Surgery Needed to End Years of Pain and Blockages

This topic is about someone who has been dealing with severe bowel blockages and pain for over two years after having an ileostomy. They are now preparing for a surgery known as the "Ken/Barbie butt" procedure, which involves a proctectomy with closure, along with other necessary repairs. The person is eager to have the surgery sooner than the initially offered date due to financial and physical challenges.

Here are some helpful insights and advice shared by others:

1. The surgery date was moved up to the 17th, just a week after the initial post, which is a relief for the person involved.

2. Before the ostomy, blockages were caused by scar tissue that completely closed the colon, leading to the removal of 11 liters of impacted stool. Insurance issues made it difficult to receive TPN, forcing the person to eat without normal elimination.

3. The surgery plan has been updated due to severe hidradenitis, which prevents full skin grafts. Surgeons will remove the rectal stump but leave the anus, possibly relocate the ileostomy, and repair the parastomal hernia and prolapse.

4. There is no specific timeline for the hospital stay, but the person is budgeting for about a month.

5. It's important to note that the Ken/Barbie-butt procedure is irreversible, so doctors may not recommend it if there's a possibility of reversing the ostomy in the future.

6. To help pass the time while waiting for surgery, it's suggested to stay busy with work or simple hobbies, focusing on pleasant activities.

7. Perseverance is key. Many have experienced multiple surgeries and postponed dates but eventually had good outcomes, so staying positive and persistent is encouraged.

8. The community offers strong support, positive thoughts, and a listening ear for anyone who needs to vent, emphasizing that they are there throughout the process.
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