This topic is about managing life with a stoma, specifically focusing on stoma shape, preventing leaks, using belts, and finding high-protein foods when certain common sources are off-limits. Here are some helpful insights and advice:
1. Stoma Shapes
- A protruding stoma sticks out above the skin, while a flush stoma is level with the skin, and a concave or flat stoma is below the skin.
- Protruding stomas generally have fewer leaks, whereas flat or concave stomas might need convex wafers or additional products for better management.
2. Leakage and Skin Protection
- Barrier rings, like the Hollister Adapt CeraRing, help improve adhesion and fill gaps. Many people continue using them despite some nurses suggesting otherwise.
- Additional methods to prevent leaks include using 3M surgical tape over the wafer, extra adhesive like Probond prosthetic glue, and warming the wafer with a heating pad or hair-dryer for a stronger bond. Ensure the skin is completely dry before applying.
- Taping the edges of the wafer or using curved barrier strips can further prevent blow-outs.
- If the current system still leaks, consider trying other brands like Coloplast or Convatec, which offer convex options that might suit irregular or oval stomas better.
3. Belts and Wraps
- Ostomy belts and wraps, such as those from Nu-Hope or Coloplast, help redistribute the pouch's weight and boost confidence. There's no evidence they harm the stoma.
- Position the belt high in the back for a slight upward lift rather than just horizontal pressure.
- Some people use belts only for the first 24 hours after a change to let the adhesive set, while others wear them daily.
- Wraps with pouch pockets or hernia belts can provide support while the wound heals. Suppliers often offer sample belts.
4. Product Samples and Custom Solutions
- Contact companies like Hollister, Coloplast, and Convatec for free samples of wafers, barrier strips, belts, and stoma plugs.
- The Coloplast Pressplate is a two-piece baseplate with an external coupling ring, suitable for use with irrigation sleeves or drainable bags.
- Some users create custom plastic baseplates with dual belt lugs and smaller stoma holes for a tighter fit.
5. Gas Management
- Stoma plugs, such as those from Coloplast, allow gas to escape without causing ballooning.
- Accept that some gas is inevitable; chew food thoroughly and test problematic foods in small amounts.
6. High-Protein, Low-Fat, No-Dairy Ideas
- Consider poultry (chicken or turkey) and fish/seafood.
- Lean pork cuts are another option.
- Instant Breakfast with skim milk or lactose-free milk, if tolerated.
- Ready-to-drink shakes like Pure Protein or Premier Protein, which are whey-based and low in sugar. Note that whey is a dairy derivative, so test your tolerance.
- If whey, pea, and soy are intolerable, explore rice-protein or hemp-protein powders.
- Although eggs are suggested by several people, they may not be suitable for everyone.
- Consider following FODMAP diet principles to identify foods that produce gas.
7. General Tips
- Expect the stoma size to change during the first few months. Use measuring guides and cut-to-fit wafers until the size stabilizes, then switch to pre-cut wafers for convenience.
- Introduce new foods or products gradually and keep track of the results.
- Manufacturer websites and past forum posts often contain additional dietary and product information, which is typically free to access.
See full discusison