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Dec 20, 2022

Reversal Recovery - 30 Days Out and Managing Expectations

The topic is about the recovery process 30 days after a colostomy reversal. This procedure follows an initial cancer surgery that got infected, leading to an emergency repair and six months with a colostomy. Now, the person is navigating the challenges and progress of their recovery journey. Here are some key points and advice shared by others who have been through similar experiences:

1. Pain and Medical Exams
- Experiencing significant abdominal and rectal pain after eating is common. Blood work and exams might show normal results, but the pain could be due to colon spasms. An antispasmodic medication can help manage this pain when needed.

2. Healing Timeline
- Recovery can take several months to feel "normal" again. The new connections in the colon need time to regain nerve supply and muscle memory. With a low reconnection, the rectal storage capacity is limited.

3. Bowel Function
- It's normal for bowel movements to vary between severe diarrhea and days without stool. While diarrhea is more common, having stool-free days can provide relief for perianal skin.

4. Lifestyle Adjustments
- Planning outings with bathroom locations in mind is helpful. Carrying a "just-in-case" kit with spare clothing and wipes can ease anxiety. Using A & D Ointment can help with skin irritation, and it's important to be prepared for less-than-ideal bathroom supplies.

5. Mind-set
- Adjusting expectations is key. Setting a goal, like returning to activities by summer, can provide motivation. Sharing experiences can also help others who are preparing for reversal surgery.

Additional advice and insights from others include:

- In the early days, experiencing pain, diarrhea, and emotional stress is common. It's important not to panic if you're only a few weeks into recovery.
- Antispasmodics are often prescribed and should be used as needed to avoid over-medication.
- Always travel with spare clothing, wipes, and a barrier ointment to manage skin care and reduce anxiety.
- Choosing a good colorectal team can make a significant difference. If local care feels inadequate, consider traveling to a well-reviewed specialist.
- Long wait times for scans or appointments can be frustrating, but persistent follow-up can help.
- Positive outcomes are possible, as some have successfully returned to near-normal bowel function after reversal.
- Anatomical considerations, like the length of the residual rectum, can affect stool-holding capacity. Discussing these factors with your surgeon is important when deciding on a reversal.
- Taking recovery one day at a time, celebrating small victories, and maintaining a sense of humor can help navigate the journey.
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