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Jan 24, 2023

Proctectomy and Future Fertility - Seeking Reassurance

This topic is about the concerns someone might have regarding fertility after undergoing a complete proctectomy, also known as "Barbie Butt" surgery. This procedure involves the removal of the remaining rectum and anus, and the person is worried about the potential impact on their ability to have children in the future. Here are some helpful insights and advice shared by others who have been through similar experiences:

1. The surgery is urgent due to ongoing active ulcerative colitis after a previous operation. Although the person considered freezing their eggs, they are unable to do so because of time limitations and the high cost involved.

2. The surgeon has expressed confidence that fertility will be preserved, but the person is still feeling anxious about the possibility of infertility.

3. Many people have shared positive experiences regarding fertility and sexual function after a proctectomy:
- One woman was able to conceive four years after her surgery and gave birth to a healthy son, albeit prematurely, via emergency C-section. She has not experienced any long-term kidney or stoma issues in the 33 years since and has needed to use birth control.
- A man, 35 years after his proctectomy, reports maintaining full sexual function.

4. The outcome of the surgery can vary, and the skill of the colorectal surgeon plays a crucial role. It's important to research the surgeon's expertise and have a detailed discussion about the potential fertility risks.

5. When time allows, consider exploring fertility-preservation options like egg freezing.

6. It's beneficial to seek guidance from specialists, including both your colorectal surgeon and a gynecologist who has experience with pelvic surgeries.

7. Connecting with other ostomy parents can provide valuable advice and support. You can find communities and resources on platforms like:
- Facebook group: https://www.facebook.com/groups/1045078022311972/
- Facebook page “Stoma in a Teacup”: https://www.facebook.com/stomainateacup
- Instagram account “bagladymama”: https://www.instagram.com/bagladymama/

8. Many in the community have successfully conceived and raised children after a complete proctectomy, and fears of infertility are often unfounded.
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