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Jan 26, 2023

Struggling with Stoma Care - Needing Motivation

This topic is about finding the motivation to regularly change a stoma appliance and achieve longer wear times. The person sharing their experience is on their fourth day with their appliance and knows it's time for a change to prevent skin issues, but they feel unmotivated. They sometimes regret having the surgery when faced with this task, even after enjoying several carefree days. They wonder if others also lose momentum after doing well.

Here are some helpful insights and advice shared by others:

- The person now changes their appliance every 3-4 days after consulting with Coloplast’s Care Team, which is an improvement from daily changes.
- Their change routine takes about an hour, including 30 minutes for air-drying to let the skin breathe.
- They found that not all stoma powders are the same, with Adept brand powder working best for them.
- Hospitals might discharge patients with the cheapest systems. It's suggested to contact companies like Hollister or Coloplast for assessments and try free samples to achieve at least a 3-day wear time.

Advice and insights from others include:

1. Perspective and Motivation
- Some people can only manage 1-2 days, so being able to go 4 days is considered fortunate.
- Consider the consequences of not changing: leaks, skin irritation, and laundry issues are worse than a 30-minute change.
- Remember that for some, the stoma was life-saving and offers freedom; gratitude can help ease frustration.

2. Time-Saving and Routine Tips
- Many people complete a change in 5-30 minutes; some manage two stomas in 15-20 minutes.
- Combine the change with a shower: have supplies ready, remove the appliance, shower without it, use Head and Shoulders Classic shampoo on the skin, dry, and reapply.
- Schedule changes (e.g., every Monday and Friday) to make them part of your routine and reduce mental resistance.
- Use distractions like music or composing poems during drying time to avoid feeling it's wasted.

3. Skin-Care and Longer Wear Strategies
- Experiment with different systems: Hollister 2-piece, Coloplast, Welland pre-cut washers, and various wafers.
- Manufacturers and suppliers offer free samples and assessments via phone or Zoom.
- Adept stoma powder has been helpful for many; using Head & Shoulders Classic wash, aluminum-acetate, and vinegar soaks can keep skin calm.
- Rinsing the pouch with warm water after each emptying can provide a cleaner feel and extend barrier life.
- If skin issues persist, consult hospital or clinic ostomy teams for new product recommendations.

4. Coping with Emotions
- The early months can be anxiety-inducing, but confidence grows with practice; some even name their stoma.
- Positive self-talk can help manage emotional dips, like reminding yourself that the task needs to be done.
- Remember that others face greater challenges, which can help lift discouragement.

5. Night-Time and Social Situations
- For urostomates, after drinking or parties, it's important to rotate the pouch, connect the night bag, and ensure the tubing isn’t twisted. Accept this as part of the new bedtime routine.
See full discusison
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