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Jan 31, 2023

Reversal Process - My Journey and Questions

This topic is about the process of reversing a loop ileostomy, including the pre-testing involved, the challenges one might face, and the support that can be helpful during this time. Here are some insights and advice shared by others who have gone through similar experiences:

- The journey began with the discovery of a 2.5 cm T2 rectal carcinoma during a routine colonoscopy. Surgery involved a laparoscopic low anterior resection with the creation of a loop ileostomy. The pathology report was positive, showing Stage I cancer with clean margins and no need for chemotherapy or radiation.

- The plan included a Gastrografin contrast enema and a colonoscopy to assess the anastomosis. If both tests were satisfactory, the ileostomy reversal would be scheduled.

- During the Gastrografin enema, only a small amount of fluid was used, and most of it returned immediately, indicating a well-healed anastomosis with no leakage. Disposable underwear was helpful in managing any post-test leakage.

- The possibility of experiencing "low-anterior syndrome" was acknowledged, which involves frequent, small, and urgent bowel movements until the rectum adapts. Stocking up on products like Always Discreet or Depends can be useful during this transition.

- A flexible sigmoidoscopy confirmed complete healing, and the reversal surgery was scheduled.

Advice and insights from others include:

1. Pre-reversal imaging:
- Most found the Gastrografin enema tolerable, with humor and relaxed staff making the experience easier.
- Some experienced severe leakage after the contrast was introduced, so it's wise to bring extra supplies like wafers, pouches, clothes, towels, disposable underwear, body-cleansing wipes, and strong adhesive.
- Some hospitals provide disposable underwear, pads, and wipes, so it's worth asking in advance.

2. What to expect immediately after reversal:
- Pain is usually limited to the stoma site and is often less severe than the original surgery.
- "Low anterior syndrome" is common, with many small, urgent bowel movements and crampy BMs, but it typically improves over time. Patience and protective garments are recommended.
- Abdominal soreness is common but usually resolves within weeks. Walking and early mobilization can help speed recovery.

3. Long-term adaptation:
- Over time, the frequency and liquidity of bowel movements decrease. Some have reported continued progress even 20 months post-reversal.
- Experimenting with diet and allowing time for the small bowel and rectum to adapt can help thicken stool. Staying hydrated is important.

4. Lymph-node counts:
- A count of 12–17 nodes is common, and 15 is within normal standards, especially when negative.

5. Emotional and logistical tips:
- The final "go-ahead" for surgery often comes after last-minute imaging, so plan childcare or family travel with this uncertainty in mind.
- Knowing the operating-room staff personally can greatly reduce anxiety.
- Maintain a sense of humor and ask all questions; surgeons will provide details when asked.

6. Products mentioned:
- Always Discreet and Depends disposable underwear.
- Standard ostomy wafers and pouches, with some keeping cyanoacrylate "super-glue" on hand for emergencies.

These shared experiences emphasize the importance of preparation, realistic expectations about bowel function, and patience during the adaptation period after reversal.
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