This topic is about someone experiencing severe lower-abdominal pain that feels like bladder pain, occurring three weeks after having a laparoscopic ileostomy. The person is trying to understand the cause of these painful episodes and how to manage them. Here are some insights and advice that might help:
1. The pain episodes start late in the day, peak within hours, and are gone by the next morning. Walking, urinating, or having a partially full bladder during these episodes is painful. However, urine appears normal once the pain subsides, and ileostomy output is normal or thick, suggesting it's not a food blockage.
2. During the worst pain episode, there were chills, headache, loss of energy/appetite, and a lot of gas leaving the stoma. Passing gas helped reduce the pain slightly. Ice cream was consumed the day before this episode.
3. The person follows a low-residue diet as per the surgeon's guidelines and drinks 4 liters of water daily. They have not taken prescription pain medication and are considering if regular Tylenol is safe.
4. The surgeon has only checked a urine sample for infection so far. The person is unsure what triggers the pain and wonders if internal stitches could be involved, as the incision is directly above the bladder.
5. A new headache episode occurred, possibly due to mild dehydration. A heating pad was purchased, and there's curiosity about whether the pain is just gas build-up or something more serious.
6. Before surgery, the person was diagnosed with ulcerative colitis, which is now considered "cured."
Advice and insights include:
- Medication & Safety: Avoid taking un-labeled white pills. Regular or rapid-release Tylenol is safe, but avoid 8-hour/extended-release tablets as they may not digest properly with an ileostomy.
- Gas Pain & Management: Gas can be painful post-ileostomy since the colon is no longer there to hold it. Lying down, applying gentle pressure around the stoma, or using a heating pad can help. Keeping a food diary might identify triggers like dairy. Some surgeons recommend Gabapentin for nerve/muscle pain around the stoma.
- Hydration & Electrolytes: Headaches and dizziness often indicate dehydration. Monitor urine volume and color, aiming for 1–1.5 liters in 24 hours, with clear to pale yellow urine. Plain water might not suffice; consider oral rehydration or electrolyte drinks to maintain balance.
- Activity & Healing: Sharp pains can occur from internal healing at three weeks post-surgery. Avoid activities like bending, lifting, and dishwashing until cleared by a doctor. If pain worsens, seek medical advice.
- When to Seek Medical Review: If pain attacks intensify, are accompanied by chills/fever, or feel obstructive, contact the surgeon immediately. A complete blood count can rule out infection, and imaging tests can check for obstructions or other issues.
- Other Possible Causes: Rare lower-abdominal infections might require antibiotics even if initial tests are negative. Ensure the bladder is fully emptying, as lingering catheter-related inflammation is possible.
- General Tips: Keep oral rehydration drinks at home. Track food intake, pain episodes, output consistency, and any symptoms to discuss with the surgeon or gastroenterologist.
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