This topic is about dealing with the challenges and sometimes embarrassing moments that come with living with an ostomy or Crohn’s disease. The originator shares a personal story from before their ostomy surgery, highlighting the difficulties they faced and how those experiences led them to choose surgery. Here are some helpful insights and advice shared by others:
1. Despite the large number of ostomy users, there is curiosity about why there aren't better alternatives to current ostomy bags. However, there is also appreciation for how much these appliances have improved over the years.
2. Historical perspective:
- Decades ago, people had to use makeshift solutions like taping mason jars to their stomas or using hot-water-bottle-type devices. Today’s pouches, while not perfect, are a big step forward.
3. Securing the pouch:
- An elastic belt can be worn over the pouch to keep it secure and prevent it from coming loose.
- Creating cotton fabric pockets or sleeves can help hold the pouch in place, keep plastic off the skin, and offer extra support and discretion.
4. Managing gas and odor in confined spaces:
- Everyone with an ostomy experiences gas; it’s a normal bodily function, just managed differently. Try to release or “burp” the pouch in well-ventilated restrooms when you can.
5. Emotional support and normalization:
- Accidents can happen to anyone, even in formal settings like military balls or on public transport. Sharing these stories can help reduce feelings of shame and build a sense of community.
- Acknowledging the advancements in ostomy technology can help foster gratitude and resilience.
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