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Feb 17, 2023

Struggling with Isolation After Colostomy Surgery

This topic is about the challenges faced by someone who is three months into life after an emergency colostomy surgery. They are dealing with significant weight loss, fear, and feelings of isolation. Here are some pieces of advice and insights that might be helpful:

1. You are not alone. There are about 29,000 people with ostomies who visit the site regularly. Feel free to ask questions, share your experiences, and seek support from others who understand what you're going through.

2. Consider mental health support. Many people find therapy or counseling helpful in dealing with changes in body image, depression, and anxiety. Food-aversion therapy might also be beneficial.

3. Advocate for your health:
- If your current doctors can't explain your weight loss, look for a gastroenterology "center of excellence" in South Carolina or nearby states.
- It's important to wait for a surgical reversal until the underlying issue is diagnosed and you are nutritionally stronger, as healthier patients tend to have better outcomes.
- Some doctors, especially younger ones, may stick to strict protocols. Older, more experienced doctors might be more open to listening. Be persistent but try to communicate clearly without overwhelming them with medical jargon.
- Women’s symptoms can sometimes be minimized. Make sure to assert yourself and emphasize your personal circumstances, like being a parent.

4. Legal considerations: Pursuing a malpractice case for ignored symptoms can be challenging, and the chances of winning are low. However, consulting an attorney might be worthwhile if you feel it's necessary.

5. Daily coping strategies:
- Take things one day at a time. It's normal to feel frustrated with pouch care initially, but it usually becomes easier with routine.
- Short walks, meeting with friends or family, and talking openly can help reduce feelings of isolation.
- Maintaining a sense of humor can be a great way to cope with setbacks.
- On better days, try to reconnect with a part of your former personality, like being sassy or fun, to help rebuild your confidence.

6. Work and energy: Teaching in a stressful environment can be tough. Consider a gradual return to work, seek accommodations, or explore alternative assignments until you feel stronger.

7. Long-term outlook: Many people have gone through severe health challenges, including sepsis and significant weight loss, and have still found a good quality of life in the years that followed. Health and mood can improve significantly over time.
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