This topic is about the challenges of finding experienced ostomy nurses in the U.S. Many seasoned nurses have retired, and hospitals often replace them with less-experienced wound-care nurses who may not have the specialized knowledge needed for ostomy care. Here are some insights and advice to help navigate this situation:
1. Verify that your current ostomy nurse is still employed and available to assist you.
2. Keep searching until you find a truly knowledgeable professional who can provide the care you need.
3. Understand that the advice to "see an ostomy nurse" might not be as straightforward as it sounds due to the scarcity of experienced professionals.
4. Consider contacting nursing schools, as they may teach ostomy care and could suggest trainees or faculty members willing to help.
5. Utilize manufacturer programs like Convatec’s me+ program, which can arrange free or low-cost virtual consultations. Manufacturer nurses often provide product samples, guidance, and ongoing support without pressuring you to make purchases.
6. Virtual visits can be effective. For example, a nurse from Corstrata can watch a full change via video, offer solutions to issues like pancaking or leakage, and provide product recommendations.
7. Request consistency from home-health agencies. If a substitute nurse lacks ostomy skills, ask that they not return.
8. Be aware that hernia help may be limited. Some nurses can only assist with sizing for a hernia belt, so manage your expectations accordingly.
9. Even newer nurses might be familiar with the latest, more flexible systems. Long-time users should remain open to trying updated supplies that better fit changing body contours.
10. In the UK, many ostomy nurses work for product companies rather than hospitals, which might explain easier access to care there.
11. Expect some scarcity, as wound-care staff are often mislabeled as ostomy experts, and hospitals may not have enough ostomates to justify dedicated positions. Self-education and peer forums can be essential resources.
12. For those with unusual stoma shapes, a customized approach may require persistent searching and self-trial of products when professional help is unavailable.
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